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Marit Skivenes, Astrid Strandbu (2023)
A Child Perspective and Children's ParticipationChildren, Youth and Environments, 16
G. White, M. Suchowierska, Margaret Campbell (2004)
Developing and systematically implementing participatory action research.Archives of physical medicine and rehabilitation, 85 4 Suppl 2
A. Cusick, N. Lannin, K. Lowe (2007)
Adapting the Canadian Occupational Performance Measure for use in a paediatric clinical trialDisability and Rehabilitation, 29
I. Edwards, Mark Jones, J. Higgs, F. Trede, G. Jensen (2004)
What is collaborative reasoning?Advances in Physiotherapy, 6
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Goal attainment scaling: A general method for evaluating comprehensive community mental health programsCommunity Mental Health Journal, 4
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M. Law, S. Hanna, Gillian King, Patricia Hurley, S. King, M. Kertoy, M. Kertoy, P. Rosenbaum (2003)
Factors affecting family-centred service delivery for children with disabilities.Child: care, health and development, 29 5
A. Cusick, S. Mcintyre, I. Novak, N. Lannin, K. Lowe (2006)
A comparison of goal attainment scaling and the Canadian occupational performance measure for paediatric rehabilitation researchPediatric Rehabilitation, 9
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Family-centred service: moving ideas into practice.Child: care, health and development, 31 6
D. Steenbeek, M. Ketelaar, K. Galama, J. Gorter (2008)
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Linda Franck, P. Callery (2004)
Re-thinking family-centred care across the continuum of children's healthcare.Child: care, health and development, 30 3
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Transparency and tuning of rehabilitation care for children with cerebral palsy: A multiple case study in five children with complex needsDevelopmental Neurorehabilitation, 10
R. Siebes, L. Wijnroks, M. Ketelaar, P. Schie, J. Gorter, A. Vermeer (2007)
Parent participation in paediatric rehabilitation treatment centres in the Netherlands: a parents' viewpoint.Child: care, health and development, 33 2
White White, Suchowierska Suchowierska, Campbell Campbell (2004)
Strategies for a systematic implementation of participatory action research in community researchArchives of Physical Medicine and Rehabilitation, 85
E. Locke, G. Latham (2002)
Building a practically useful theory of goal setting and task motivation. A 35-year odyssey.The American psychologist, 57 9
W. Levack, Kathryn Taylor, R. Siegert, S. Dean, K. McPherson, M. Weatherall (2006)
Is goal planning in rehabilitation effective? A systematic reviewClinical Rehabilitation, 20
B. Nijhuis, H. Reinders-Messelink, A. Blécourt, A. Boonstra, Esther Calamé, J. Groothoff, H. Nakken, K. Postema (2008)
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C. Dunst, I. Dempsey (2007)
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S. Østensjø, I. Øien, B. Fallang (2008)
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Background In paediatric rehabilitation, there is a belief in goal‐setting as a fundamental component of decision‐making that encourages collaboration and motivation, and improves outcomes. This study aimed to explore parents' and professionals' perceptions of setting and implementing goals within a family centred rehabilitation programme for preschoolers with cerebral palsy (CP). Methods Parents and service providers of 13 preschoolers with CP, classified in Gross Motor Function Classification System level I‐III, participated in two‐step focus group interviews. Results Three major themes emerged, each with two subthemes: (1) ‘Goals enhance competence’ with the subthemes ‘parents as drivers’, and ‘awareness through observation’; (2) ‘Goals direct attention’ with the subthemes ‘goals as valuable means’ and ‘collaboration through participation’, and (3) ‘Goals enter everyday life’ with the subthemes ‘goals as activities’ and ‘training vs. everyday practise’. A fourth theme ‘child perspective’ with the subthemes ‘follow‐up initiative’, ‘capture mastery’, and ‘create learning opportunities’ was both an exclusive theme and integrated in the other three main themes. Conclusions Active involvement of parents throughout the process of setting and implementing goals seemed to increase their feeling of competency and partnership with professionals. Concrete goals based on families' preferences and concerns, participatory observation, and discussions with professionals, came out as valuable means for practice of functional tasks within home environments.
Child: Care, Health and Development – Wiley
Published: Jul 1, 2010
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