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J. Varni, M. Seid, P. Kurtin (2001)
PedsQL™ 4.0: Reliability and Validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in Healthy and Patient PopulationsMedical Care, 39
J. Bartko (1966)
The Intraclass Correlation Coefficient as a Measure of ReliabilityPsychological Reports, 19
Effect Size Calculators
K. Umeshita, S. Eguchi, H. Egawa, H. Haga, M. Kasahara, N. Kokudo, S. Sakisaka, Y. Takada, E. Tanaka, H. Eguchi, S. Uemoto, H. Ohdan (2019)
Liver transplantation in Japan: Registry by the Japanese Liver Transplantation SocietyHepatology Research, 49
J. Murphy (2017)
Patient Reported Outcomes.Irish medical journal, 110 9
The Japanese Liver Transplantation Society (2014)
Liver transplantation in Japan: Registry by the Japanese Liver Transplantation SocietyJpn. J. Transplant, 49
M. Crowley‐Matoka, M. Siegler, D. Cronin (2004)
Long‐Term Quality of Life Issues Among Adult‐to‐Pediatric Living Liver Donors: A Qualitative ExplorationAmerican Journal of Transplantation, 4
J. Lau, Xiao-nan Yu, Y. Chu, M. Shing, E. Wong, T. Leung, Chi-kong Li, T. Fok, W. Mak (2010)
Validation of the Chinese version of the Pediatric Quality of Life Inventory (PedsQL) Cancer Module.Journal of pediatric psychology, 35 1
I. Sato, Akiko Higuchi, T. Yanagisawa, A. Mukasa, K. Ida, Y. Sawamura, K. Sugiyama, N. Saito, T. Kumabe, Mizuhiko Terasaki, R. Nishikawa, Y. Ishida, K. Kamibeppu (2010)
Development of the Japanese version of the Pediatric Quality of Life Inventory™ Brain Tumor ModuleHealth and Quality of Life Outcomes, 8
M. Testa, D. Simonson (1996)
Assessment of quality-of-life outcomes.The New England journal of medicine, 334 13
Shikha Sundaram, E. Alonso, B. Haber, J. Magee, E. Fredericks, B. Kamath, N. Kerkar, P. Rosenthal, R. Shepherd, C. Limbers, J. Varni, Patricia Robuck, R. Sokol (2013)
Health related quality of life in patients with biliary atresia surviving with their native liver.The Journal of pediatrics, 163 4
L. Simons, R. Blount (2007)
Identifying barriers to medication adherence in adolescent transplant recipients.Journal of pediatric psychology, 32 7
D. Engle (2001)
Psychosocial aspects of the organ transplant experience: what has been established and what we need for the future.Journal of clinical psychology, 57 4
(2011)
[ Perceived burden of nurturing in pediatric organ transplantation in Japan . ]
Ryota Kikuchi, K. Mizuta, T. Urahashi, Y. Sanada, N. Yamada, Erika Onuma, M. Ono, M. Endo, I. Sato, K. Kamibeppu (2017)
Development of the Japanese version of the Pediatric Quality of Life Inventory™ Transplant ModulePediatrics International, 59
(2010)
Current status and prospects of pediatric liver transplantation.] Transplant
C. LaRosa, H. Baluarte, K. Meyers (2011)
Outcomes in pediatric solid‐organ transplantationPediatric Transplantation, 15
A. Green, J. Meaux, Amy Huett, K. Ainley (2009)
Constantly Responsible, Constantly Worried, Constantly Blessed: Parenting after Pediatric Heart TransplantProgress in Transplantation, 19
Kyoko Kobayashi, K. Kamibeppu (2010)
Measuring quality of life in Japanese children: Development of the Japanese version of PedsQLPediatrics International, 52
S. Petersen, B. Hägglöf, H. Stenlund, E. Bergström (2009)
Psychometric properties of the Swedish PedsQL, Pediatric Quality of Life Inventory 4.0 generic core scalesActa Pædiatrica, 98
J. Weissberg-Benchell, T. Zielinski, S. Rodgers, R. Greenley, D. Askenazi, S. Goldstein, E. Fredericks, S. McDiarmid, L. Williams, C. Limbers, K. Tuzinkiewicz, S. Lerret, E. Alonso, J. Varni (2010)
Pediatric Health‐Related Quality of Life: Feasibility, Reliability and Validity of the PedsQL™ Transplant ModuleAmerican Journal of Transplantation, 10
I. Spurkland, T. Bjørbae, P. Hagemo (2001)
Psychosocial functioning in children after transplantation of the heart, and heart and lungsCardiology in the Young, 11
C. Stubblefield, Ruth Murray (2000)
Making the transition: pediatric lung transplantation.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners, 14 6
K. Mizuta, T. Urahashi, Y. Ihara, Y. Sanada, T. Wakiya, N. Yamada, N. Okada, S. Egami, S. Hishikawa, M. Hyodo, Y. Sakuma, T. Fujiwara, H. Kawarasaki, Y. Yasuda (2012)
Living donor liver transplantation in children with cholestatic liver disease: a single-center experience.Transplantation proceedings, 44 2
Liver transplantation (LT) is one of the treatment options to improve survival rate and health‐related quality of life (HRQOL) in pediatric and adolescent patients with end‐stage liver failure. In Japan, biliary atresia (BA) frequently necessitates LT in children and adolescents, with >1,700 pediatric and adolescent patients having undergone LT, most of whom received living donor liver transplantation (LDLT). In Japan, LT for BA achieves good outcomes, and the 5 year survival rate in Japanese patients with BA after LT is approximately 90%.In the assessment of outcomes of LT for pediatric and adolescent BA, objective indexes, such as patient and graft survival rate, are usually used, but patient‐reported outcomes in the Japanese population have not been assessed. Organ transplant aims to cure the primary disease and entails a transition to a new chronic condition. Compared with other diseases, for BA, LT is most often required during infancy, thereby prolonging the number of post‐transplant years. Therefore, in transplantation, patient outcomes cannot be assessed only using objective indexes, and it is important to assess HRQOL outcomes from the perspective of the patient.The HRQOL integrates domains of objective assessments of personal functioning or health status as well as subjective perceptions of health. These
Pediatrics International – Wiley
Published: Jan 1, 2018
Keywords: ; ; ; ;
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