Patients’ perspective of the impact of COPD on quality of life: a focus group study for patients with COPD

Patients’ perspective of the impact of COPD on quality of life: a focus group study for... Background The quality of life has been shown to be poor in patients with chronic obstructive pulmonary disease (COPD). Furthermore, patients’ perspective and attitudes toward COPD and its impact on their quality of life have been remarkably ignored. Objective To explore patients’ views and perceptions regarding COPD and its impact on their quality of life. Setting COPD clinic at the Royal Medical Services Hospital, Amman, Jordan. Method Focus groups discussions to explore patients’ views and perceptions about COPD were conducted using purposive sampling technique till data saturation achieved. A predesigned topic guides including knowledge about COPD and its management and the impact of COPD on the quality of life in patients with COPD was used to facilitate discussion during the interviews. All interviews were transcribed and analyzed using a thematic analysis approach. Main outcome measure Impact of COPD on patients’ quality of life. Results The main themes emerged included information needs about COPD and its management, physical and psychological impact of COPD and reliance on others. The most commonly expressed problem was breathlessness which restricted physical activity and led to panic and anxiety attacks. Constant breathlessness coupled with anxiety can force COPD patient to avoid all physical activity and becoming reliant on others. Conclusion In addition to the lack of knowledge about COPD and its management, it was evident that COPD had a negative physical and psychological impact on COPD patients. Future disease management and clinical pharmacy services programs should address the current study findings in order to improve the health outcomes for patients with COPD. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png International Journal of Clinical Pharmacy Springer Journals

Patients’ perspective of the impact of COPD on quality of life: a focus group study for patients with COPD

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Publisher
Springer Journals
Copyright
Copyright © 2018 by Springer International Publishing AG, part of Springer Nature
Subject
Medicine & Public Health; Internal Medicine; Pharmacy
ISSN
2210-7703
eISSN
2210-7711
DOI
10.1007/s11096-018-0614-z
pmid
29542033
Publisher site
See Article on Publisher Site

Abstract

Background The quality of life has been shown to be poor in patients with chronic obstructive pulmonary disease (COPD). Furthermore, patients’ perspective and attitudes toward COPD and its impact on their quality of life have been remarkably ignored. Objective To explore patients’ views and perceptions regarding COPD and its impact on their quality of life. Setting COPD clinic at the Royal Medical Services Hospital, Amman, Jordan. Method Focus groups discussions to explore patients’ views and perceptions about COPD were conducted using purposive sampling technique till data saturation achieved. A predesigned topic guides including knowledge about COPD and its management and the impact of COPD on the quality of life in patients with COPD was used to facilitate discussion during the interviews. All interviews were transcribed and analyzed using a thematic analysis approach. Main outcome measure Impact of COPD on patients’ quality of life. Results The main themes emerged included information needs about COPD and its management, physical and psychological impact of COPD and reliance on others. The most commonly expressed problem was breathlessness which restricted physical activity and led to panic and anxiety attacks. Constant breathlessness coupled with anxiety can force COPD patient to avoid all physical activity and becoming reliant on others. Conclusion In addition to the lack of knowledge about COPD and its management, it was evident that COPD had a negative physical and psychological impact on COPD patients. Future disease management and clinical pharmacy services programs should address the current study findings in order to improve the health outcomes for patients with COPD.

Journal

International Journal of Clinical Pharmacy – Springer Journals

Published: Mar 14, 2018

References

  • The GOLD Scientific Committee. Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. NHLBI/WHO global initiative for chronic obstructive lung disease (GOLD) workshop summary
    Pauwels, R; Buist, A; Calverley, P; Jenkins, C; Hurd, S
  • Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease: GOLD executive summary
    Vestbo, J; Hurd, SS; Agustí, AG; Jones, PW; Vogelmeier, C; Anzueto, A
  • Pulmonary rehabilitation for chronic obstructive pulmonary disease
    McCarthy, B; Casey, D; Devane, D; Murphy, K; Murphy, E; Lacasse, Y
  • Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010: a systematic analysis for the Global Burden of Disease Study 2010
    Lozano, R; Naghavi, M; Foreman, K; Lim, S; Shibuya, K; Aboyans, V
  • Global burden of COPD: risk factors, prevalence, and future trends
    Mannino, DM; Buist, AS
  • Chronic obstructive pulmonary disease: current burden and future projections
    Lopez, AD; Shibuya, K; Rao, C; Mathers, CD; Hansell, AL; Held, LS
  • Global, regional, and national disability-adjusted life years (DALYs) for 306 diseases and injuries and healthy life expectancy (HALE) for 188 countries, 1990–2013: quantifying the epidemiological transition
    Murray, CJ; Barber, RM; Foreman, KJ; Abbasoglu Ozgoren, A; Abd-Allah, F; Abera, SF
  • Unmet needs of patients with chronic obstructive pulmonary disease (COPD): a qualitative study on patients and doctors
    Wong, SS; Abdullah, N; Abdullah, A; Liew, SM; Ching, SM; Khoo, EM
  • A surveil-lance summary of smoking and review of tobacco control in Jordan
    Belbeisi, A; Al Nsour, M; Batieha, A; Brown, DW; Walke, HT
  • Prevalence of chronic obstructive pulmonary disease among adult male cigarettes smokers: a community-based study in Jordan
    Al Omari, M; Khassawneh, BY; Khader, Y; Dauod, AS; Bergus, G
  • Dis-tribution of COPD-related symptoms in the Middle East and North Africa: results of the BREATHE study
    Tageldin, MA; Nafti, S; Khan, JA; Nejjari, C; Beji, M; Mahboub, B
  • Implementing findings of research
    Haines, A; Jones, R
  • The methodology of focus groups: the importance of interaction between research participants
    Kitzinger, J
  • Qualitative research: an introduction to focus group methodology and its application
    Chang, MY; Hsu, LL
  • Qualitative research. Introducing focus groups
    Kitzinger, J
  • The discovery of grounded theory: strategies for qualitative research
    Glaser, BD; Strauss, AL
  • Identification of psychosocial factors which influence patient adherence with antihypertensive medication
    Lennon, C; Hughes, C; Johnston, D; McElnay, J
  • Qualitative research in health care: analyzing qualitative data
    Pope, C; Ziebland, S; Mays, N
  • Helplessness, self-blame and faith may impact on self-management in COPD: a qualitative study
    Sheridan, N; Kenealy, T; Salmon, E; Rea, H; Raphael, D; Schmidt-Busby, J
  • Knowledge gaps in patients with COPD and their proxies
    Nakken, N; Janssen, DJA; Bogaart, EHA; Muris, JWM; Vercoulen, JH; Custers, FL
  • Anxiety and chronic obstructive pulmonary disease: prevalence, impact, and treatment
    Brenes, GA
  • A qualitative study of unmet healthcare needs in chronic obstructive pulmonary disease. A potential role for specialist palliative care?
    Schroedl, CJ; Yount, SE; Szmuilowicz, E; Hutchison, PJ; Rosenberg, SR; Kalhan, R
  • Identifying key domains of healthrelated quality of life for patients with chronic obstructivepulmonary disease: the patient perspective
    Paap, MC; Bode, C; Lenferink, LI; Groen, LC; Terwee, CB; Ahmed, S
  • Life impact and treatment preferences of individuals with asthma and chronicobstructive pulmonary disease: results from qualitative interviews and focus groups
    Svedsater, H; Roberts, J; Patel, C; Macey, J; Hilton, E; Bradshaw, L
  • Anxiety and depression in COPD patients: the roles of gender and disease severity
    Marco, F; Verga, M; Reggente, M; Maria Casanova, F; Santus, P; Blasi, F
  • Depressive symptoms and chronic obstructive pulmonary disease
    Ng, TP; Niti, M; Tan, WC; Cao, Z; Ong, KC; Eng, P
  • Self-care issues from the perspective of individuals with chronic obstructive pulmonary disease
    Cicutto, L; Brooks, D; Henderson, K
  • Living with severe COPD. A qualitative exploration of the experience of patients in Leeds
    Guthrie, SJ; Hill, KM; Muers, ME

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