Qual Life Res (2017) 26:2551–2562 DOI 10.1007/s11136-017-1572-y Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure 1,2 1 3 • • Carolyn E. Schwartz Victoria E. Powell Adi Eldar-Lissai Accepted: 4 April 2017 / Published online: 25 April 2017 The Author(s) 2017. This article is an open access publication Abstract trace lines, and lack of local dependence. The resulting Aims The purpose of this article is to describe the psy- subscales demonstrate high reliability, and good construct chometric development of the Hemophilia Caregiver validity. They show moderate incremental and discriminant Impact measure. validity. Methods Qualitative interviews (n = 22) and a cross-sec- Conclusions The Hemophilia Caregiver Impact measure is tional web-based study (n = 458) were implemented with a useful new tool for clinical research on hemophilia. In caregivers of people with hemophilia. Classical test theory addition to having eight relevant subscales, the measure and item response theory analyses were implemented to can also be summarized with two scores. This versatility evaluate the psychometric characteristics of the measure. can be useful in analyzing studies with very small samples, Results The study sample had a mean age of 39 and a which is to be expected when dealing
Quality of Life Research – Springer Journals
Published: Apr 25, 2017
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