Introduction: Childhood and Disability

Introduction: Childhood and Disability From growth attenuation therapy for severely developmentally disabled children to the post-natal management of infants with trisomy 13 and 18, pediatric treatment decisions regularly involve assessments of the probability and severity of a child’s disability. Because these decisions are almost always made by surrogate decision-makers (parents and caregivers) and because these decision-makers must often make decisions based on both prognostic guesses and potentially biased quality of life judgments, they are among the most ethically complex in pediatric care. As the introduction to HEC Forum’s special thematic issue on Childhood and Disability, this article orients the reader to the history of bioethics’ relationship to both pediatric ethics and disability studies and introduces the issue’s five manuscripts. As clinicians, disability scholars, philosophers and clinical ethicists writing on various aspects of pediatric disability, the articles’ authors all invite readers to dig beneath an overly-simplified version of what disability might mean to children and families and instead embrace a posture of genuine humility, recognizing both the limits and harms of traditional medical and bioethical responses (or indifferences) to the disabled child. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png HEC Forum Springer Journals

Introduction: Childhood and Disability

HEC Forum , Volume 29 (3) – Jun 21, 2017

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Publisher
Springer Netherlands
Copyright
Copyright © 2017 by Springer Science+Business Media Dordrecht
Subject
Philosophy; Ethics; Medical Law; Philosophy of Medicine; Theory of Medicine/Bioethics
ISSN
0956-2737
eISSN
1572-8498
D.O.I.
10.1007/s10730-017-9330-7
Publisher site
See Article on Publisher Site

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