Health-Related Quality of Life in Individuals with Down Syndrome: Results from a Non-Interventional Longitudinal Multi-National Study

Health-Related Quality of Life in Individuals with Down Syndrome: Results from a... Adv Ther (2017) 34:2058–2069 DOI 10.1007/s12325-017-0591-y ORIGINAL RESEARCH Health-Related Quality of Life in Individuals with Down Syndrome: Results from a Non- Interventional Longitudinal Multi-National Study . . . . Diana Rofail Daniel Froggatt Rafael de la Torre Jamie Edgin . . . . Priya Kishnani Renaud Touraine Sarah Whitwham Lisa Squassante Omar Khwaja Xavier Liogier D’Ardhuy Received: May 16, 2017 / Published online: August 9, 2017 Springer Healthcare Ltd. 2017 conducted in adolescents and adults with DS. ABSTRACT HRQoL was assessed (n = 90) using the par- ent-report KIDSCREEN-27 questionnaire. Introduction: To date, there is little research on Results: HRQoL domain scores were found to health-related quality of life (HRQoL) in Down be similar to those in the KIDSCREEN-27 Euro- syndrome (DS), and existing research is variable pean normative group data set on the Physical with regard to reported HRQoL in DS. There are Well-being, Psychological Well-being, Auton- also no HRQoL measures developed specifically to omy and Parent Relations domains. Compared be used with individuals with Down syndrome. with the normative data set, the adolescent Methods: A multi-national, longitudinal, participants with DS in the current study were 24-week non-interventional study was found to have lower scores on the Social http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Advances in Therapy Springer Journals

Health-Related Quality of Life in Individuals with Down Syndrome: Results from a Non-Interventional Longitudinal Multi-National Study

Loading next page...
 
/lp/springer_journal/health-related-quality-of-life-in-individuals-with-down-syndrome-8dwMiLMruO
Publisher
Springer Healthcare
Copyright
Copyright © 2017 by Springer Healthcare Ltd.
Subject
Medicine & Public Health; Internal Medicine; Oncology; Cardiology; Rheumatology; Endocrinology; Pharmacology/Toxicology
ISSN
0741-238X
eISSN
1865-8652
D.O.I.
10.1007/s12325-017-0591-y
Publisher site
See Article on Publisher Site

References

You’re reading a free preview. Subscribe to read the entire article.


DeepDyve is your
personal research library

It’s your single place to instantly
discover and read the research
that matters to you.

Enjoy affordable access to
over 12 million articles from more than
10,000 peer-reviewed journals.

All for just $49/month

Explore the DeepDyve Library

Unlimited reading

Read as many articles as you need. Full articles with original layout, charts and figures. Read online, from anywhere.

Stay up to date

Keep up with your field with Personalized Recommendations and Follow Journals to get automatic updates.

Organize your research

It’s easy to organize your research with our built-in tools.

Your journals are on DeepDyve

Read from thousands of the leading scholarly journals from SpringerNature, Elsevier, Wiley-Blackwell, Oxford University Press and more.

All the latest content is available, no embargo periods.

See the journals in your area

Monthly Plan

  • Read unlimited articles
  • Personalized recommendations
  • No expiration
  • Print 20 pages per month
  • 20% off on PDF purchases
  • Organize your research
  • Get updates on your journals and topic searches

$49/month

Start Free Trial

14-day Free Trial

Best Deal — 39% off

Annual Plan

  • All the features of the Professional Plan, but for 39% off!
  • Billed annually
  • No expiration
  • For the normal price of 10 articles elsewhere, you get one full year of unlimited access to articles.

$588

$360/year

billed annually
Start Free Trial

14-day Free Trial