Adv Ther (2017) 34:2058–2069 DOI 10.1007/s12325-017-0591-y ORIGINAL RESEARCH Health-Related Quality of Life in Individuals with Down Syndrome: Results from a Non- Interventional Longitudinal Multi-National Study . . . . Diana Rofail Daniel Froggatt Rafael de la Torre Jamie Edgin . . . . Priya Kishnani Renaud Touraine Sarah Whitwham Lisa Squassante Omar Khwaja Xavier Liogier D’Ardhuy Received: May 16, 2017 / Published online: August 9, 2017 Springer Healthcare Ltd. 2017 conducted in adolescents and adults with DS. ABSTRACT HRQoL was assessed (n = 90) using the par- ent-report KIDSCREEN-27 questionnaire. Introduction: To date, there is little research on Results: HRQoL domain scores were found to health-related quality of life (HRQoL) in Down be similar to those in the KIDSCREEN-27 Euro- syndrome (DS), and existing research is variable pean normative group data set on the Physical with regard to reported HRQoL in DS. There are Well-being, Psychological Well-being, Auton- also no HRQoL measures developed speciﬁcally to omy and Parent Relations domains. Compared be used with individuals with Down syndrome. with the normative data set, the adolescent Methods: A multi-national, longitudinal, participants with DS in the current study were 24-week non-interventional study was found to have lower scores on the Social
Advances in Therapy – Springer Journals
Published: Aug 9, 2017
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