Qual Life Res (2018) 27:379–388 DOI 10.1007/s11136-017-1711-5 Developing a patient-reported outcome measure for HIV care on perceived barriers to antiretroviral adherence: assessing the needs of HIV clinicians through qualitative analysis 1,2,3,4 1,2,3,4 1,2,3,4 2,3 Isabelle Toupin · Kim Engler · David Lessard · Leo Wong · 1 5 6 1,2,3,4 Andràs Lènàrt · Bruno Spire · François Raffi · Bertrand Lebouché Accepted: 25 September 2017 / Published online: 13 October 2017 © Springer International Publishing AG 2017 Abstract quality of life and stressful life events; (6) ‘overburdened,’ Purpose To identify HIV clinicians’ needs for the clinical that the PRO provides information on the person’s home use of a new patient-reported outcome measure (PRO) on environment, socioeconomic status and cultural constraints. barriers to antiretroviral therapy (ART) adherence. For all or most patient profiles, the clinicians wished that the Methods In 2015, five focus groups with 31 clinicians from PRO be completed, minimally, prior to the medical consulta- France were transcribed, coded with Atlas.ti, and submitted tion and to receive alerts, under varying conditions, when to a typological analysis. problematic scores were detected. Depending on the pro- Results The analysis identified seven patient profiles, each file, there was preference for the inclusion of open-ended tied to distinct barriers to adherence and to specific needs for questions
Quality of Life Research – Springer Journals
Published: Oct 13, 2017
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