Access the full text.
Sign up today, get DeepDyve free for 14 days.
B. Smits-Engelsman, Mariette Klerks, A. Kirby (2011)
Beighton score: a valid measure for generalized hypermobility in children.The Journal of pediatrics, 158 1
B. Birmaher, S. Khetarpal, D. Brent, Marlane Cully, L. Balach, J. Kaufman, Sandra Neer (1997)
The Screen for Child Anxiety Related Emotional Disorders (SCARED): scale construction and psychometric characteristics.Journal of the American Academy of Child and Adolescent Psychiatry, 36 4
L. Breau, P. McGrath, C. Camfield, G. Finley (2002)
Psychometric properties of the non-communicating children's pain checklist-revisedPAIN, 99
V. Sousa, W. Rojjanasrirat (2011)
Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: a clear and user-friendly guideline.Journal of evaluation in clinical practice, 17 2
Gurkirpal Singh, B. Athreya, J. Fries, D. Goldsmith (1994)
Measurement of health status in children with juvenile rheumatoid arthritis.Arthritis and rheumatism, 37 12
G. Crombez, P. Bijttebier, C. Eccleston, T. Mascagni, Gustaaf Mertens, L. Goubert, K. Verstraeten (2003)
The child version of the pain catastrophizing scale (PCS-C): a preliminary validationPain, 104
RE Petty, TR Southwood, P Manners, J Baum, DN Glass, J Goldenberg, X He, J Maldonado-Cocco, J Orozco-Alcala, AM Prieur, ME Suarez-Almazor, P Woo (2004)
International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001J Rheumatol, 31
R. Cimaz, A. Marino, A. Martini (2017)
How I treat juvenile idiopathic arthritis: A state of the art review.Autoimmunity reviews, 16 10
A. Greca, W. Stone (1993)
Social Anxiety Scale for Children-Revised: Factor Structure and Concurrent ValidityJournal of Clinical Child Psychology, 22
AC Carle, EM Dewitt, M Seid (2011)
Measures of health status and quality of life in juvenile rheumatoid arthritis: Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module 3.0, Juvenile Arthritis Quality of Life Questionnaire (JAQQ), Paediatric Rheumatology Quality of Life Scale (PRQL), and Childhood Arthritis Health Profile (CAHP)Arthritis Care Res (Hoboken), 63
L. Rangel, M. Garralda, A. Hall, S. Woodham (2003)
Psychiatric adjustment in chronic fatigue syndrome of childhood and in juvenile idiopathic arthritisPsychological Medicine, 33
S. Shyen, B. Amine, S. Rostom, D. Badri, M. Ezzahri, N. Mawani, F. Moussa, S. Gueddari, M. Wabi, R. Abouqal, B. Chkirate, N. Hajjaj-Hassouni (2013)
Sleep and its relationship to pain, dysfunction, and disease activity in juvenile idiopathic arthritisClinical Rheumatology, 33
Anne Leegaard, J. Lomholt, M. Thastum, T. Herlin (2013)
Decreased Pain Threshold in Juvenile Idiopathic Arthritis: A Cross-sectional StudyThe Journal of Rheumatology, 40
J. Stinson, M. Connelly, L. Jibb, L. Schanberg, G. Walco, L. Spiegel, S. Tse, E. Chalom, P. Chira, M. Rapoff (2012)
Developing a standardized approach to the assessment of pain in children and youth presenting to pediatric rheumatology providers: a Delphi survey and consensus conference process followed by feasibility testingPediatric Rheumatology Online Journal, 10
A Shahid (2011)
STOP, THAT and One Hundred Other Sleep Scales 1st edn
T. Ding, A. Hall, K. Jacobs, Joel David (2008)
Psychological functioning of children and adolescents with juvenile idiopathic arthritis is related to physical disability but not to disease status.Rheumatology, 47 5
S. Thangaratinam, Charles Redman (2005)
The Delphi techniqueThe Obstetrician & Gynaecologist, 7
AC Carle (2011)
438Arthritis Care Res (Hoboken), 63
E. Batu, Özge Coşkun, H. Sönmez, D. Karali, Elif Aydin, Y. Bilginer, Evrim Saygı, S. Özen (2017)
Acceptability and Practicality of the Turkish Translation of Pediatric Gait Arm Legs and Spine in Turkish ChildrenJCR: Journal of Clinical Rheumatology, 23
L. Peterson, T. Mason, A. Nelson, W. O'fallon, S. Gabriel (1997)
Psychosocial outcomes and health status of adults who have had juvenile rheumatoid arthritis: a controlled, population-based study.Arthritis and rheumatism, 40 12
J. Lomholt, M. Thastum, T. Herlin (2013)
Pain experience in children with juvenile idiopathic arthritis treated with anti-TNF agents compared to non-biologic standard treatmentPediatric Rheumatology Online Journal, 11
J. Weiss, N. Luca, A. Boneparth, J. Stinson (2014)
Assessment and Management of Pain in Juvenile Idiopathic ArthritisPediatric Drugs, 16
A. Consolaro, N. Ruperto, A. Bazsó, A. Pistorio, S. Magni-Manzoni, G. Filocamo, C. Malattia, S. Viola, A. Martini, A. Ravelli (2009)
Development and validation of a composite disease activity score for juvenile idiopathic arthritis.Arthritis and rheumatism, 61 5
G. Filocamo, A. Consolaro, B. Schiappapietra, S. Dalprà, B. Lattanzi, S. Magni-Manzoni, N. Ruperto, A. Pistorio, S. Pederzoli, A. Civino, D. Guseinova, Ester Masala, S. Viola, A. Martini, A. Ravelli (2011)
A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The Juvenile Arthritis Multidimensional Assessment ReportThe Journal of Rheumatology, 38
H. Ozdogan, H. Ozdogan, N. Ruperto, O. Kasapcopur, A. Bakkaloğlu, Nil Arisoy, S. Ozen, Erbil Ünsal, M. Melikoğlu (2001)
The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).Clinical and experimental rheumatology, 19 4 Suppl 23
E. Demirkaya, A. Consolaro, H. Sonmez, G. Giancane, D. Şimşek, A. Ravelli (2016)
Current Research in Outcome Measures for Pediatric Rheumatic and Autoinflammatory DiseasesCurrent Rheumatology Reports, 18
(2010)
Review article DOI: 10.3345/kjp.2010.53.11.921
R. Petty, T. Southwood, P. Manners, J. Baum, D. Glass, J. Goldenberg (2004)
International League of Associations for Rheumatology: International League of Associations for Rheumatology classification of juvenile idiopathic arthritis: second revision, Edmonton, 2001
F. Vanoni, J. Suris, A. Scheven-Gête, B. Fonjallaz, M. Hofer (2016)
The difference of disease perception by juvenile idiopathic arthritis patients and their parents: analysis of the JAMAR questionnairePediatric Rheumatology Online Journal, 14
H. Brunner, A. Ravelli (2009)
Developing outcome measures for paediatric rheumatic diseases.Best practice & research. Clinical rheumatology, 23 5
A. Consolaro, G. Giancane, B. Schiappapietra, S. Davì, S. Calandra, S. Lanni, A. Ravelli (2016)
Clinical outcome measures in juvenile idiopathic arthritisPediatric Rheumatology Online Journal, 14
A. Shahid, K. Wilkinson, S. Marcu, Colin Shapiro (2011)
Center for Epidemiological Studies Depression Scale for Children (CES-DC)
E. Tarakçı, S. Baydogan, O. Kasapcopur, A. Dirican (2013)
Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in TurkeyQuality of Life Research, 22
H. Brunner, E. Giannini (2003)
Health-related quality of life in children with rheumatic diseasesCurrent Opinion in Rheumatology, 15
B Birmaher, S Khetarpa, D Brent, M Cully, L Balach, J Kaufman, S Mckenzie Neer (1995)
Screen for child anxiety related disorders (SCARED)Child Adolescent Psychiatry, 36
M. Iglesias, R. Cuttica, M. Calvo, M. Micelotta, A. Pringe, M. Brusco (2006)
Design and validation of a new scale to assess the functional ability in children with juvenile idiopathic arthritis (JIA).Clinical and experimental rheumatology, 24 6
S. Merkel, T. Voepel-Lewis, J. Shayevitz, S. Malviya (1997)
The FLACC: a behavioral scale for scoring postoperative pain in young children.Pediatric nursing, 23 3
H. Foster, S. Jandial (2013)
pGALS – paediatric Gait Arms Legs and Spine: a simple examination of the musculoskeletal systemPediatric Rheumatology Online Journal, 11
M Iglesias (2006)
713Clin Exp Rheumatol, 24
C. Powell (2003)
The Delphi technique: myths and realities.Journal of advanced nursing, 41 4
R. Stein, C. Riessman (1980)
The development of an impact-on-family scale: preliminary findings.Medical care, 18 4
I. Bouaddi, S. Rostom, D. Badri, A. Hassani, B. Chkirate, B. Amine, N. Hajjaj-Hassouni (2013)
Impact of juvenile idiopathic arthritis on schoolingBMC Pediatrics, 13
B. Chorpita, C. Moffitt, J. Gray (2005)
Psychometric properties of the Revised Child Anxiety and Depression Scale in a clinical sample.Behaviour research and therapy, 43 3
SI Merkel (1997)
293Pediatr Nurs, 23
G. Filocamo, F. Sztajnbok, A. Céspedes-Cruz, S. Magni-Manzoni, A. Pistorio, S. Viola, N. Ruperto, A. Buoncompagni, A. Loy, A. Martini, A. Ravelli (2007)
Development and validation of a new short and simple measure of physical function for juvenile idiopathic arthritis.Arthritis and rheumatism, 57 6
RE Petty (2004)
390J Rheumatol, 31
E. Thompson (2015)
Hamilton Rating Scale for Anxiety (HAM-A).Occupational medicine, 65 7
Steven Howe, Steven Howe, J. Levinson, E. Shear, Sandra Hartner, G. McGirr, Marion Schulte, D. Lovell (1991)
Development of a disability measurement tool for juvenile rheumatoid arthritis. The Juvenile Arthritis Functional Assessment Report for Children and their Parents.Arthritis and rheumatism, 34 7
K. Rickels, K. Howard (2004)
The physician questionnaire: A useful tool in psychiatric drug researchPsychopharmacologia, 17
YS Hahn, JG Kim (2010)
Pathogenesis and clinical manifestations of juvenile rheumatoid arthritisKorean J Pediatr, 53
T. Palermo, A. Lewandowski, A. Long, C. Burant (2008)
Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): The CALI-21PAIN, 139
CM Duffy, BM Feldman (2016)
Assessment of health status, function, and quality of life outcomesPetty RE ed Textbook of Pediatric Rheumatology 7th edn
B. Chorpita, B. Chorpita, Susan Tracey, Susan Tracey, T. Brown, Tracy Collica, David Barlow (1997)
Assessment of worry in children and adolescents: an adaptation of the Penn State Worry Questionnaire.Behaviour research and therapy, 35 6
Feride Beydemir (2008)
The Impact on Famıly Scale'ın (Aile Etki Ölçeği) Türkçe'ye uyarlanması, geçerlilik ve güvenilirliği
Objective To create a new multidimensional questionnaire for the assessment of juvenile idiopathic arthritis (JIA) patients in standard clinical practice and study the validity and reliability of this questionnaire. Methods The Juvenile Arthritis Biopsychosocial and Clinical Questionnaire (JAB-Q) was created using the Delphi technique and consensus conference following an initial literature search. The questionnaire has three parts including a clinician form, child form and parent form. This is a patient/parent-centered outcome tool, which helps us to evaluate the biopsychosocial aspects of the patient, including disease activity, posture, functional and psychosocial status, fatigue, and performance in school. From January 2015 to January 2018, 6–18 years old children with JIA were enrolled in the study. The previously validated questionnaires were also applied to each participant to validate the JAB-Q: Juvenile Idiopathic Disease Arthritis Score (JADAS) and Childhood Health Assessment Questionnaire (CHAQ), and the Family Impact Questionnaire (FIS). The same questionnaire was re-administered after one week to assess the test–retest reliability in randomly selected 50 children and their parents. Results A group of experts were invited to the Delphi survey. After the Delphi tours, the final form of the questionnaire containing three parts as clinician form, child form and parent form was created. This
Rheumatology International – Springer Journals
Published: Jun 5, 2018
Read and print from thousands of top scholarly journals.
Already have an account? Log in
Bookmark this article. You can see your Bookmarks on your DeepDyve Library.
To save an article, log in first, or sign up for a DeepDyve account if you don’t already have one.
Copy and paste the desired citation format or use the link below to download a file formatted for EndNote
Access the full text.
Sign up today, get DeepDyve free for 14 days.
All DeepDyve websites use cookies to improve your online experience. They were placed on your computer when you launched this website. You can change your cookie settings through your browser.