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- Publisher
- Springer Journals
- Copyright
- Copyright © 2010 by Springer-Verlag
- Subject
- Medicine & Public Health; Oncology ; Hematology
- ISSN
- 0939-5555
- eISSN
- 1432-0584
- DOI
- 10.1007/s00277-010-0981-6
- pmid
- 20461516
- Publisher site
- See Article on Publisher Site
Abstract
Immune thrombocytopenic purpura (ITP) is a rare disease with infrequent serious bleeding making clinical trials difficult. One solution to this problem is to use alternative outcome measures such as health-related quality of life (HRQL). This review describes the various HRQL tools available to researchers including measures that are generic (applicable to many different disease types) and disease-specific measures developed explicitly for ITP specifically detailing the Kids' ITP Tools and the ITP-patient administered questionnaire. This review describes how incorporating HRQL tools such as these will allow researchers to move forward and do methodologically sound research.
Journal
Annals of Hematology – Springer Journals
Published: Jul 1, 2010