Pediatric Cardiology https://doi.org/10.1007/s00246-020-02329-8 EDITORIAL An Ethical Argument for Professional Regulation and Regionalization of Care in Pediatric Cardiology and Cardiac Surgery 1 2 Angira Patel · Rupali Gandhi Received: 27 January 2020 / Accepted: 18 February 2020 © Springer Science+Business Media, LLC, part of Springer Nature 2020 Survival for children with congenital heart disease (CHD) be present for informed consent to be valid are: (1) disclo- has improved significantly over the last three decades. From sure of medical information (burdens, risks, benefits, alter - 1979 to 1993, only 67% percent of infants with the most natives) by the physician, (2) competency of the patient or severe forms survived to one year of age, whereas from surrogate decision-maker to understand, process, and make 1994 to 2005, 82.5% survived . Nevertheless, data show decisions, and (3) lack of coercion. In pediatric cardiac sur- that mortality improvements for infants with CHD are not gery programs, before informed consent can be practiced, uniform across institutions and centers that perform fewer physicians need a system by which they can stay abreast of surgeries typically have higher mortality rates . their current institutional outcomes and how they compare Recently, a high-profile article in the New York Times nationwide. It is reasonable to consider
Pediatric Cardiology – Springer Journals
Published: Mar 20, 2020
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