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References (51)
-
J. Mack, Lie-Hong Chen, K. Cannavale, Olivia Sattayapiwat, R. Cooper, C. Chao (2015)
End-of-Life Care Intensity Among Adolescent and Young Adult Patients With Cancer in Kaiser Permanente Southern California.JAMA oncology, 1 5
-
Malcolm Masso, S. Allingham, M. Banfield, C. Johnson, T. Pidgeon, P. Yates, K. Eagar (2015)
Palliative Care Phase: Inter-rater reliability and acceptability in a national studyPalliative Medicine, 29
-
M. Arora, D. Baidya (2013)
WHO guidelines on the pharmacological treatment of persisting pain in children with medical illnessIndian Journal of Medical Research, 138
-
W. Landier (2011)
Adherence to oral chemotherapy in childhood acute lymphoblastic leukemia: an evolutionary concept analysis.Oncology nursing forum, 38 3
-
Deena Levine, Liza-Marie Johnson, B. Mandrell, Jie Yang, N. West, P. Hinds, Justin Baker (2015)
Does phase 1 trial enrollment preclude quality end‐of‐life care? Phase 1 trial enrollment and end‐of‐life care characteristics in children with cancerCancer, 121
-
D. Anghelescu, Kelly Zhang, Lane Faughnan, Deqing Pei (2015)
The Safety and Effectiveness of Patient-controlled Analgesia in Outpatient Children and Young Adults With Cancer: A Retrospective StudyJournal of Pediatric Hematology/Oncology, 37
-
A. Bates, Julia Kearney (2015)
Understanding death with limited experience in life: dying children's and adolescents’ understanding of their own terminal illness and deathCurrent Opinion in Supportive and Palliative Care, 9
-
Sarah Miller, L. McNutt, M. McCann, N. Mccorry (2014)
Use of corticosteroids for anorexia in palliative medicine: a systematic review.Journal of palliative medicine, 17 4
-
J. Berger, Paula Lester, Lucan Rodrigues (2016)
Medical Therapy of Malignant Bowel Obstruction With Octreotide, Dexamethasone, and MetoclopramideAmerican Journal of Hospice and Palliative Medicine®, 33
-
R. Harding, V. Simms, Victoria Simms, N. Calanzani, Irene Higginson, S. Hall, M. Gysels, A. Meñaca, C. Bausewein, L. Deliens, L. Deliens, P. Ferreira, F. Toscani, B. Daveson, L. Ceulemans, B. Gomes (2013)
If you had less than a year to live, would you want to know? A seven‐country European population survey of public preferences for disclosure of poor prognosisPsycho‐Oncology, 22
-
Ø. Paulsen, N. Aass, S. Kaasa, O. Dale (2013)
Do corticosteroids provide analgesic effects in cancer patients? A systematic literature review.Journal of pain and symptom management, 46 1
-
S. Nayak, M. Cunliffe (2008)
Lidocaine 5% patch for localized chronic neuropathic pain in adolescents: report of five casesPediatric Anesthesia, 18
-
J. Breault (2011)
DNR, DNAR, or AND? Is Language Important?The Ochsner journal, 11 4
-
E. Valdez-Martínez, J. Noyes, M. Bedolla (2014)
When to stop? Decision-making when children’s cancer treatment is no longer curative: a mixed-method systematic reviewBMC Pediatrics, 14
-
A. Bredlau, M. Mcdermott, H. Adams, R. Dworkin, C. Venuto, S. Fisher, J. Dolan, D. Korones (2013)
Oral ketamine for children with chronic pain: a pilot phase 1 study.The Journal of pediatrics, 163 1
-
Andrea Warnick (2015)
Supporting youth grieving the dying or death of a sibling or parent: considerations for parents, professionals, and communitiesCurrent Opinion in Supportive and Palliative Care, 9
-
M. Lyon, S. Jacobs, L. Briggs, Y. Cheng, Jichuan Wang (2013)
Family-centered advance care planning for teens with cancer.JAMA pediatrics, 167 5
-
S. Yennurajalingam, E. Bruera (2014)
Role of corticosteroids for fatigue in advanced incurable cancer: is it a ‘wonder drug’ or ‘deal with the devil’Current Opinion in Supportive and Palliative Care, 8
-
A. Othman, M. Mohamad, H. Sayed (2016)
Transdermal Fentanyl for Cancer Pain Management in Opioid-Naive Pediatric Cancer Patients.Pain medicine
-
P. Vondracek, H. Ošlejšková, T. Kepak, P. Mazánek, J. Štěrba, Marie Rysava, P. Gál (2009)
Efficacy of pregabalin in neuropathic pain in paediatric oncological patients.European journal of paediatric neurology : EJPN : official journal of the European Paediatric Neurology Society, 13 4
-
M. Bluebond-Langner, J. Belasco, A. Goldman, C. Belasco (2007)
Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 25 17
-
E. Sizoo, W. Grisold, M. Taphoorn (2014)
Neurologic aspects of palliative care: the end of life setting.Handbook of clinical neurology, 121
-
B. Hammes, J. Klevan, M. Kempf, Marc Williams (2005)
Pediatric advance care planning.Journal of palliative medicine, 8 4
-
L. Walter, G. Nixon, M. Davey, P. Downie, R. Horne (2015)
Sleep and fatigue in pediatric oncology: A review of the literature.Sleep medicine reviews, 24
-
J. Temel, J. Greer, A. Muzikansky, E. Gallagher, S. Admane, V. Jackson, C. Dahlin, C. Blinderman, J. Jacobsen, W. Pirl, J. Billings, T. Lynch (2010)
Early palliative care for patients with metastatic non-small-cell lung cancer.The New England journal of medicine, 363 8
-
Helena Kondryn, C. Edmondson, J. Hill, T. Eden (2011)
Treatment non-adherence in teenage and young adult patients with cancer.The Lancet. Oncology, 12 1
-
A. Dickman, Jennifer Schneider (2002)
The Syringe Driver: Continuous subcutaneous infusions in palliative care -
V. Rasmussen, Vicki Lundberg, T. Jespersen, H. Hasle (2015)
Extreme doses of intravenous methadone for severe pain in two children with cancerPediatric Blood & Cancer, 62
-
D. Butković, S. Toljan, Beata Mihovilovic-Novak (2006)
Experience with gabapentin for neuropathic pain in adolescents: report of five casesPediatric Anesthesia, 16
-
L. Jalmsell, M. Lövgren, U. Kreicbergs, J. Henter, B. Frost (2016)
Children with cancer share their views: tell the truth but leave room for hopeActa Paediatrica, 105
-
A. Rosenberg, A. Postier, K. Osenga, U. Kreicbergs, B. Neville, V. Dussel, J. Wolfe (2015)
Long-term psychosocial outcomes among bereaved siblings of children with cancer.Journal of pain and symptom management, 49 1
-
L. Wiener, S. Zadeh, H. Battles, K. Baird, E. Ballard, Janet Osherow, M. Pao (2012)
Allowing Adolescents and Young Adults to Plan Their End-of-Life CarePediatrics, 130
-
L. Wiener, S. Zadeh, L. Wexler, M. Pao (2013)
When silence is not golden: Engaging adolescents and young adults in discussions around end‐of‐life care choicesPediatric Blood & Cancer, 60
-
Oliver Seyfried, J. Hester (2012)
Opioids and endocrine dysfunctionBritish Journal of Pain, 6
-
S. Montel, V. Laurence, L. Copel, H. Pacquement, C. Flahault (2009)
Place of death of adolescents and young adults with cancer: First study in a French populationPalliative and Supportive Care, 7
-
M. Weaver, Katherine Heinze, C. Bell, L. Wiener, A. Garee, K. Kelly, R. Casey, Anne Watson, P. Hinds (2016)
Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative reviewPalliative Medicine, 30
-
Keim-MalpassJessica, M. EricksonJeanne, M. Charles (2014)
End-of-Life Care Characteristics for Young Adults with Cancer Who Die in the HospitalJournal of Palliative Medicine, 17
-
James Fraser, Nancy Harris, A. Berringer, H. Prescott, F. Finlay (2010)
Advanced care planning in children with life-limiting conditions – the Wishes DocumentArchives of Disease in Childhood, 95
-
D. Anghelescu, Rakesh Patel, D. Mahoney, Luis Trujillo, Lane Faughnan, Brenda Steen, J. Baker, Deqing Pei (2016)
Methadone prolongs cardiac conduction in young patients with cancer-related pain.Journal of opioid management, 12 2
-
A. Grinyer, Zephyrine Barbarachild (2011)
Teenage and young adult palliative and end of life care service evaluation -
R. George, S. Hutton (2003)
Palliative care in adolescents.European journal of cancer, 39 18
-
D. Sokol (2009)
The death of DNRBMJ : British Medical Journal, 338
-
N. Kamperidis, J. Goodhand, F. Chowdhury, Y. Koodun, N.C. Direzke, S. Naik, I. Sanderson, N. Croft, F. Langmead, P. Irving, D. Rampton, J. Lindsay (2012)
Factors Associated With Nonadherence to Thiopurines in Adolescent and Adult Patients With Inflammatory Bowel DiseaseJournal of Pediatric Gastroenterology and Nutrition, 54
-
Leone Snowden (2016)
Handbook of drug administration via enteral feeding tubes. 3rd ed.Australian Prescriber, 39
-
M. Lyon, S. Jacobs, L. Briggs, Y. Cheng, Jichuan Wang (2014)
A longitudinal, randomized, controlled trial of advance care planning for teens with cancer: anxiety, depression, quality of life, advance directives, spirituality.The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 54 6
-
A. Bredlau, R. Thakur, D. Korones, R. Dworkin (2013)
Ketamine for pain in adults and children with cancer: a systematic review and synthesis of the literature.Pain medicine, 14 10
-
A. Wolff, J. Browne, W. Whitehouse (2010)
Personal resuscitation plans and end of life planning for children with disability and life-limiting/life-threatening conditionsArchives of Disease in Childhood: Education & Practice Edition, 96
-
J. Keim-Malpass, K. Stegenga, B. Loudin, Christine Kennedy, S. Kools (2016)
“It’s Back! My Remission Is Over”Journal of Pediatric Oncology Nursing, 33
-
S. Jacobs, J. Pérez, Y. Cheng, A. Sill, Jichuan Wang, M. Lyon (2015)
Adolescent end of life preferences and congruence with their parents' preferences: Results of a survey of adolescents with cancerPediatric Blood & Cancer, 62
-
S. Cohen-Gogo, G. Marioni, S. Laurent, N. Gaspar, M. Semeraro, M. Gabolde, C. Dufour, D. Valteau‐Couanet, L. Brugières (2011)
End of life care in adolescents and young adults with cancer: experience of the adolescent unit of the Institut Gustave Roussy.European journal of cancer, 47 18
-
Cecelia Valrie, M. Bromberg, T. Palermo, L. Schanberg (2013)
A Systematic Review of Sleep in Pediatric Pain PopulationsJournal of Developmental & Behavioral Pediatrics, 34
- Publisher
- Springer International Publishing
- Copyright
- © Springer International Publishing AG 2018
- ISBN
- 978-3-319-66172-8
- Pages
- 179 –209
- DOI
- 10.1007/978-3-319-66173-5_9
- Publisher site
- See Chapter on Publisher Site
Abstract
[Despite cancer continuing to be the third leading [1] cause of death in adolescents and young adult (AYA); palliative care is often only been considered towards end of life [2]. The majority of AYAs with progressing or relapsing disease continue to die in hospital receiving cancer-directed therapies [3]. With access to more clinical trials and further lines of therapies, the AYA may live longer, burdened with increasingly complex symptoms, as a result of their cancer or its treatment. This, and the recent evidence [4] of early palliative care input having a life prolonging effect even in the face of less cancer-directed therapy and active intervention at end of life, supports its early introduction, from either diagnosis 57 or first relapse.]
Published: Feb 28, 2018
Keywords: Adolescents And Young Adults (AYA); Cancer-directed Therapy; Advance Care Plan (ACP); Life Care; Travel Lodge