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Terminal illness: views of patients and their lay carers:

Terminal illness: views of patients and their lay carers: This paper examines the responses of 28 terminally ill patients and their lay carers to identical questions about the patients' experiences in the month prior to their admission to an inpatient hospice. No statistically significant differences were found between the reports of patients or carers regarding the patients' activities of daily living, their physical symptoms, or the evaluations of the care they received. Discrepancies between accounts were most likely to concern the presence or absence of psychological symptoms, the degree of distress caused to patients by their symptoms, and the main symptoms experienced by the patient on their admission to the hospice. It is suggested that the accounts of patients' experiences given by their carers can be used as a valid source of information. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Palliative Medicine SAGE

Terminal illness: views of patients and their lay carers:

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References (18)

Publisher
SAGE
Copyright
Copyright © 2019 by SAGE Publications
ISSN
0269-2163
eISSN
1477-030X
DOI
10.1177/026921639500900107
Publisher site
See Article on Publisher Site

Abstract

This paper examines the responses of 28 terminally ill patients and their lay carers to identical questions about the patients' experiences in the month prior to their admission to an inpatient hospice. No statistically significant differences were found between the reports of patients or carers regarding the patients' activities of daily living, their physical symptoms, or the evaluations of the care they received. Discrepancies between accounts were most likely to concern the presence or absence of psychological symptoms, the degree of distress caused to patients by their symptoms, and the main symptoms experienced by the patient on their admission to the hospice. It is suggested that the accounts of patients' experiences given by their carers can be used as a valid source of information.

Journal

Palliative MedicineSAGE

Published: Jul 1, 2016

Keywords: caregivers,patient advocacy,terminal care

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