Access the full text.
Sign up today, get DeepDyve free for 14 days.
Loading next page...
/lp/royal-college-of-nursing-rcn/transferring-young-people-with-cystic-fibrosis-to-adult-care-IOUSFtRFHh
References (35)
-
Spencer L Snape D
The foundations of qualitative research -
Keaton M Chaudhry SR
Evaluation of a cystic fibrosis transition program from pediatric to adult care -
Aultman JM Wear D
Making fun of patients: medical students’ perceptions and use of derogatory and cynical humor in clinical settings -
Thomson D
The social meaning and function of humour in physiotherapy practice: an ethnography -
Jedeloo S van Staa AL
Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers -
Herbert G Armstrong N
Optimizing patient involvement in quality improvement -
Slap GB Tuchman LK
Transition to adult care: experiences and expectations of adolescents with a chronic illness -
Flume PA
Smoothing the transition from pediatric to adult care: lessons learned -
Casey D
Findings from non-participant observational data concerning health promoting nursing practice in the acute hospital setting focusing on generalist nurses -
Avis M
Choice cuts: an exploratory study of patients’ views about participation in decision-making in a day surgery unit -
Lewis PA Dodge JA
Cystic fibrosis mortality and survival in the UK: 1947-2003 -
Callery P Savage E
Clinic consultations with children and parents on the dietary management of cystic fibrosis -
Sloman F Kennedy A
Young people with chronic illness: the approach to transition -
Pasquali E
Learning to laugh: humor as therapy -
Deaton C Tierney S
Liminality and transfer to adult services: A qualitative investigation involving young people with cystic fibrosis -
Spencer L Ritchie J
Carrying out qualitative analysis -
van Staa A
Unraveling triadic communication in hospital consultations with adolescents with chronic conditions: the added value of mixed methods research -
Schwartz LA Tuchman LK
Cystic fibrosis and transition to adult medical care -
Boulton M Fitzpatrick R
Qualitative methods for assessing health care -
Partridge RA Penson RT
Laughter: the best medicine? -
Seid M Lotstein DS
Transition from pediatric to adult care for youth diagnosed with type 1 diabetes in adolescence -
Achille M Lugasi T
Patients’ perspective on factors that facilitate transition from child-centred to adult-centred health care: a theory integrated metasummary of quantitative and qualitative studies -
Hamilton S Jones SE
The missing link: paediatric to adult transition in diabetes services -
Mukhopadhyay S Williams B
From child to adult: an exploration of shifting family roles and responsibilities in managing physiotherapy for cystic fibrosis -
Ziebland S Chapple A
The role of humor for men with testicular cancer -
Gumidyala AP Plevinsky JM
Transition experience of young adults with inflammatory bowel -
Coyne I
Children’s participation in consultations and decision-making at health service level: a review of the literature -
Kirk S
Transitions in the lives of children with complex healthcare needs -
Flume PA Anderson DL
Transition programs in cystic fibrosis centers: perceptions of patients -
Tamalet A Duguépéroux I
Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care -
Campbell C Nasr S
Transition program from pediatric to adult care for cystic fibrosis patients -
Diener-West M McLaughlin SE
Improving transition from pediatric to adult cystic fibrosis care: lessons from a national survey of current practices -
Dixon-Woods M Young B
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents -
Mulhall A
In the field: notes on observation in qualitative research -
Viner RM McDonagh JE
Lost in transition? Between paediatric and adult services
- Publisher
- Royal College of Nursing (RCN)
- Copyright
- ©2012 RCN Publishing Company Ltd. All rights reserved. Not to be copied, transmitted or recorded in any way, in whole or part, without prior permission of the publishers.
- Subject
- Art & Science
- ISSN
- 0029-6570
- eISSN
- 2047-9018
- DOI
- 10.7748/ns.30.16.41.s45
- pmid
- 26669406
- Publisher site
- See Article on Publisher Site
Abstract
Aim To explore activities, interactions and behaviours during the first appointment in adult care for young people with cystic fibrosis. Method Observational data were collected at 12 first appointments. Framework analysis was applied to written field notes. Findings Interaction enablers and interaction barriers were identified in the data. Practitioners endeavoured to be holistic, addressing personal as well as physical factors. This involved broaching individuals’ interests, self-disclosure and humour. Various activities were accomplished. The role of parents in the continued management of cystic fibrosis was not raised at first appointments. Discussion Practitioners require clear objectives for first appointments in adult care to ensure young people adapt to this new healthcare setting. Young people should be prepared for transfer so they can respond to and ask questions, and parents should be assisted to relinquish control of their child’s condition. Conclusion A modest set of objectives for the first appointment should be set to enable young people to retain information, while introducing them to a new service.
Journal
Nursing Standard – Royal College of Nursing (RCN)
Published: Dec 16, 2015
Keywords: cystic fibrosis observational study qualitative research transfer transitional care young people