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Mary's story

Mary's story This article describes the impact of a rare hereditary condition on an individual and their family, the difficulties of achieving a diagnosis, the support arrangements provided by social care services and help provided by the Prion Clinic in the latter stages of the condition, and terminal care at home. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Social Care and Neurodisability Pier Professional

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Publisher
Pier Professional
Copyright
Copyright © 2011 by Pier Professional Limited
ISSN
2042-0919
eISSN
2042-874X
DOI
10.5042/scn.2011.0080
Publisher site
See Article on Publisher Site

Abstract

This article describes the impact of a rare hereditary condition on an individual and their family, the difficulties of achieving a diagnosis, the support arrangements provided by social care services and help provided by the Prion Clinic in the latter stages of the condition, and terminal care at home.

Journal

Social Care and NeurodisabilityPier Professional

Published: Feb 1, 2011

Keywords: Prion condition

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