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Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis

Change of identity: the psychological and emotional impact of caring for someone with multiple... The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Social Care and Neurodisability Pier Professional

Change of identity: the psychological and emotional impact of caring for someone with multiple sclerosis

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Publisher
Pier Professional
Copyright
Copyright © 2011 by Pier Professional Limited
ISSN
2042-0919
eISSN
2042-874X
DOI
10.5042/scn.2011.0081
Publisher site
See Article on Publisher Site

Abstract

The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi-structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family. Our analysis in this phase highlights two core themes centred on identity issues faced by the participants: ‘playing detective’ in order to acquire information and manage the situation; and ‘reshaping identities’ in a shifting context, which reflected the participants' difficulties in reconfiguring important identities (at work and at home). Although previous research has addressed how carers cope, there is a dearth of qualitative literature relating to whether or not partners' identities are affected by taking a central role in caring, including how previous identities are maintained and new ones acquired.

Journal

Social Care and NeurodisabilityPier Professional

Published: Feb 1, 2011

Keywords: Multiple sclerosis

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