Access the full text.
Sign up today, get DeepDyve free for 14 days.
Loading next page...
/lp/oxford-university-press/how-many-people-have-sickle-cell-disease-in-the-uk-oE1S0GDTST
References (7)
-
Ghida Aljuburi, A. Laverty, S. Green, K. Phekoo, Ricky Banarsee, N. Okoye, D. Bell, A. Majeed (2012)
Trends in hospital admissions for sickle cell disease in England, 2001/02-2009/10.Journal of public health, 34 4
-
P. Telfer, P. Coen, S. Chakravorty, O. Wilkey, J. Evans, H. Newell, B. Smalling, R. Amos, A. Stephens, D. Rogers, F. Kirkham (2007)
Clinical outcomes in children with sickle cell disease living in England: a neonatal cohort in East London.Haematologica, 92 7
-
F. Piel, A. Tatem, Zhuojie Huang, Sunetra Gupta, T. Williams, D. Weatherall (2014)
Global migration and the changing distribution of sickle haemoglobin: a quantitative study of temporal trends between 1960 and 2000The Lancet. Global Health, 2
-
S. Brandelise, V. Pinheiro, C. Gabetta, I. Hambleton, B. Serjeant, G. Serjeant (2004)
Newborn screening for sickle cell disease in Brazil: the Campinas experience.Clinical and laboratory haematology, 26 1
-
F. Piel, S. Hay, Sunetra Gupta, D. Weatherall, T. Williams (2013)
Global Burden of Sickle Cell Anaemia in Children under Five, 2010–2050: Modelling Based on Demographics, Excess Mortality, and InterventionsPLoS Medicine, 10
-
C. Quinn, Z. Rogers, T. McCavit, G. Buchanan (2008)
Improved survival of children and adolescents with sickle cell disease.Blood, 115 17
-
M. Bouva, K. Mohrmann, Henri Brinkman, Evelien Kemper-Proper, B. Elvers, J. Loeber, Francesco Verheul, Piero Giordano (2010)
Implementing Neonatal Screening for Haemoglobinopathies in the NetherlandsJournal of Medical Screening, 17
- Publisher
- Oxford University Press
- Copyright
- © The Author(s) 2017. Published by Oxford University Press on behalf of Faculty of Public Health. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com
- ISSN
- 1741-3842
- eISSN
- 1741-3850
- DOI
- 10.1093/pubmed/fdx172
- Publisher site
- See Article on Publisher Site
Abstract
BackgroundSickle Cell Disease (SCD) is now one of the most common serious genetic condition in England. There is no reliable estimate of the total number of people living with SCD in the UK, to support commissioners and providers of services for people with SCD.AimTo obtain reliable data on the total number of people living with SCD in the UK in 2016.MethodInformation was requested from all national databases known to hold information on the number of people living with SCD in the UK. The information from each data source was first reviewed to estimate likely inaccuracies and then combined to provide a best estimate of people living with SCD in the UK.ConclusionThis process indicated there are are about 14000 people living with SCD in the UK. This is equivalent to 1 in 4600 people.
Journal
Journal of Public Health – Oxford University Press
Published: Sep 1, 2018
Keywords: blood and immune disorders; epidemiology; genetics