Access the full text.
Sign up today, get DeepDyve free for 14 days.
V. Entwistle, M. Renfrew, S. Yearley, J. Forrester, Tara Lamont (1998)
Lay perspectives: advantages for health researchBMJ, 316
Department of Health
NHS Plan
Department of Health
Research Governance for Health and Social Care
Phil Thomas (2002)
Users' Voices: The Perspective of Mental Health Service Users on Community and Hospital Care: By Diana RoseThe Psychiatrist, 26
G. Thornicroft (2000)
National Service Framework for Mental HealthThe Psychiatrist, 24
L. Baxter, L. Thorne, A. Mitchell
Small Voices Big Noises
Involve
Involving Consumers in Research and Development in the NHS: Briefing Notes for Researchers
D. Rose
The Perspectives of Mental Health Service Users on Community and Hospital Care
M. Barnes, A. Davis, J. Tew
There Ought to Be a Better Way – Users' Experiences of Compulsion under the 1983 Mental Health Act
Consumers in NHS Research Support Unit
Getting Involved in Research: A Guide for Consumers
A. Faulkner, Phil Thomas (2002)
User-led research and evidence-based medicineBritish Journal of Psychiatry, 180
P. Rhodes, A. Nocon, John Wright, S. Harrison (2001)
Involving patients in research: setting up a service users' advisory group.Journal of management in medicine, 15 2
R. Telford, Catherine Beverley, C. Cooper, J. Boote (2002)
Consumer involvement in health research : Fact or fiction?British Journal of Clinical Governance, 7
Department of Health
Health and Social Care Act 200
Purpose – There are many examples of consumer involvement in NHS research but few studies have examined the impact of this on service development or the research process. This study, involving service user and carer researchers working alongside professional researchers, aimed to examine the development of one service user and carer research group in a mental health Trust. Dersign/methodology/approach – The research involved a review of existing literature on consumer involvement in research, a review of user involvement in research in South West Yorkshire Mental Health NHS Trust, a survey of consumers and NHS staff in the Trust, and a skills audit and training needs analysis of consumers. Findings – The study identified the range and extent of consumer involvement and the impact of this on consumers and the Trust. Service users and carers were involved in a range of projects, mainly on the level of consultation or collaboration. The benefits for consumers were principally on a personal level and included gaining knowledge and experience, improved sense of well‐being, self esteem, and confidence. The benefit for the Trust was in having a service user perspective and focus. However, there is a tendency to omit service users from planning and setting priorities. Practical implications – The study pointed to the need to build the evidence base on consumer involvement in research, particularly in terms of how consumers can impact on setting research priorities and selecting appropriate methods. It identifies the need for more training for consumers and for NHS staff and for a more coherent strategy. Originality/value – This article will be of value to anyone who is at the start or in the early stages of their journey of consumer involvement. It identifies some of the practical issues faced by consumers and staff in working collaboratively, but also points to the benefits for all the stakeholders.
International Journal of Health Care Quality Assurance – Emerald Publishing
Published: Mar 1, 2005
Keywords: Research and development; Mental health services; User studies
Read and print from thousands of top scholarly journals.
Already have an account? Log in
Bookmark this article. You can see your Bookmarks on your DeepDyve Library.
To save an article, log in first, or sign up for a DeepDyve account if you don’t already have one.
Copy and paste the desired citation format or use the link below to download a file formatted for EndNote
Access the full text.
Sign up today, get DeepDyve free for 14 days.
All DeepDyve websites use cookies to improve your online experience. They were placed on your computer when you launched this website. You can change your cookie settings through your browser.