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Mary's story

Mary's story This article describes the impact of a rare hereditary condition on an individual and their family, the difficulties of achieving a diagnosis, the support arrangements provided by social care services and help provided by the Prion Clinic in the latter stages of the condition, and terminal care at home. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Social Care and Neurodisability Emerald Publishing

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Publisher
Emerald Publishing
Copyright
Copyright © 2011 Emerald Group Publishing Limited. All rights reserved.
ISSN
2042-0919
DOI
10.5042/scn.2011.0080
Publisher site
See Article on Publisher Site

Abstract

This article describes the impact of a rare hereditary condition on an individual and their family, the difficulties of achieving a diagnosis, the support arrangements provided by social care services and help provided by the Prion Clinic in the latter stages of the condition, and terminal care at home.

Journal

Social Care and NeurodisabilityEmerald Publishing

Published: Mar 24, 2011

Keywords: Prion condition; Prion diseases; Lack of diagnosis; Increasing disability; Pressure on family; Service responses; Terminal care

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