Get 20M+ Full-Text Papers For Less Than $1.50/day. Start a 14-Day Trial for You or Your Team.

Learn More →

Development of the carer well‐being and support (CWS) questionnaire

Development of the carer well‐being and support (CWS) questionnaire Purpose – A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS). Design/methodology/approach – Development and evaluation of the measure was conducted in three phases. The authors deconstructed an existing questionnaire (CUES‐C) to produce a long version measure. This was trialed with carers to reduce the number of items and a preliminary evaluation of the psychometric properties of the remaining items was undertaken. A second field test was conducted with the item‐reduced questionnaire measure to evaluate acceptability, reliability and validity. Findings – The CWS well‐being scale shows moderate acceptability and good reliability and validity. The CWS support scale shows moderate acceptability and good reliability; validity testing for the support scale is limited by the lack of appropriate validating measures. Practical implications – The CWS is a reliable, valid measure of carer well‐being and support, reflecting important aspects of carers' lives. Originality/value – This paper provides researchers and practitioners with a tool that can be used to measure and address areas of support for carers. This is important in assessing the effectiveness of new interventions and approaches. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Mental Health Review Journal Emerald Publishing

Development of the carer well‐being and support (CWS) questionnaire

Download PDF
11 pages

Loading next page...
 
/lp/emerald-publishing/development-of-the-carer-well-being-and-support-cws-questionnaire-7UjW4PPpYS
Publisher
Emerald Publishing
Copyright
Copyright © 2012 Emerald Group Publishing Limited. All rights reserved.
ISSN
1361-9322
DOI
10.1108/13619321211287184
Publisher site
See Article on Publisher Site

Abstract

Purpose – A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS). Design/methodology/approach – Development and evaluation of the measure was conducted in three phases. The authors deconstructed an existing questionnaire (CUES‐C) to produce a long version measure. This was trialed with carers to reduce the number of items and a preliminary evaluation of the psychometric properties of the remaining items was undertaken. A second field test was conducted with the item‐reduced questionnaire measure to evaluate acceptability, reliability and validity. Findings – The CWS well‐being scale shows moderate acceptability and good reliability and validity. The CWS support scale shows moderate acceptability and good reliability; validity testing for the support scale is limited by the lack of appropriate validating measures. Practical implications – The CWS is a reliable, valid measure of carer well‐being and support, reflecting important aspects of carers' lives. Originality/value – This paper provides researchers and practitioners with a tool that can be used to measure and address areas of support for carers. This is important in assessing the effectiveness of new interventions and approaches.

Journal

Mental Health Review Journal – Emerald Publishing

Published: Sep 21, 2012

Keywords: Mental health problems; Dementia; Outcome measure; Psychometrics; Psychometric evaluation; Qualitative; Mental illness; Social care; United Kingdom

References

  • Services to support carers of people with mental health problems
    Arksey, A.; Mason, A.
  • Carers and the digital divide: factors affecting internet use among carers in the UK
    Blackburn, C.; Read, J.; Hughes, N.
  • The costs of caring: impact of dementia on family caregivers
    Connell, C.; Janevic, M.; Gallant, M.
  • Carers at the Heart of 21st Century Families and Communities: A Caring System on Your Side, a Life of Your Own
    Department of Health
  • Living Well with Dementia: A National Dementia Strategy
    Department of Health
  • No Health without Mental Health: A Cross‐government Mental Health Outcomes Strategy for People of All Ages
    Department of Health
  • Increasing response rates to postal questionnaires: systematic review
    Edwards, P.; Roberts, I.; Clarke, M.; DiGuiseppi, C.; Pratap, S.; Wentz, R.; Kwan, I.
  • Dimensions of informal care and quality of life among elderly family caregivers
    Ekwall, A.; Sivberg, B.; Hallberg, I.R.
  • The process of deinstitutionalization: an international overview
    Fakhoury, W.; Priebe, S.
  • A User's Guide to the General Health Questionnaire
    Goldberg, D.P.; Williams, P.
  • Using postal questionnaires to identify carer depression prior to initial patient contact
    Graham, C.R.; Banerjee, S.; Gill, R.S.
  • A review of instruments developed to measure outcomes for carers of people with mental health problems
    Harvey, K.; Catty, J.; Langman, A.; Winfield, H.; Clement, S.; Burns, E.; White, S.; Burns, T.
  • Measuring Outcomes for People with Mental Health Problems. Report for the National Co‐ordinating Centre for NHS Service Delivery and Organisation R&D
    Harvey, K.; Langman, A.; Winfield, H.; Catty, J.; Clement, S.; White, S.; Burns, E.; Burns, T.
  • Carer distress: a prospective, population‐based study
    Hirst, M.
  • How do elderly spouse care givers of people with Alzheimer disease experience the disclosure of dementia diagnosis and subsequent care?
    Laakonnen, M.L.; Raivio, M.M.; Eloniemi‐Sulkava, U.; Saarenheimo, M.; Pietilä, M.; Tilvis, R.S.; Pitkälä, K.H.
  • Evaluating outcomes in chronic venous disorders of the leg: development of a scientifically rigorous, patient‐reported measure of symptoms and quality of life
    Lamping, D.L.; Schroter, S.; Kurz, X.; Kahn, S.R.; Abenhaim, L.
  • The community‐acquired pneumonia symptom questionnaire: a new patient‐based outcome measure to evaluate symptoms in patients with community‐acquired pneumonia
    Lamping, D.L.; Schroter, S.; Marquis, P.; Marrel, A.; Duprat‐Lomon, I.; Sagnier, P.P.
  • Determinants of burden in caregivers of patients with exacerbating schizophrenia
    Lauber, C.; Eichenberger, A.; Luginbuhl, P.; Keller, C.; Rossler, W.
  • The CUES Project: Carers' and Users' Expectations of Services. Final Report to the Department of Health
    Lelliott, P.; Beevor, A.; Hogman, G.; Hyslop, J.; Lathlean, J.; Ward, M.
  • Carers' and users' expectations of services – carer version (CUES‐C): a new instrument to support assessment of carers of people with a severe mental illness
    Lelliott, P.; Beevor, A.; Hogman, G.; Hyslop, J.; Lathlean, J.; Ward, M.
  • Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients
    McColl, E.; Jacoby, A.; Thomas, L.; Soutter, J.; Bamford, C.; Steen, N.; Thomas, R.; Harvey, E.; Garratt, A.; Bond, J.
  • Predictors of loneliness in caregivers of persons with Parkinson's disease
    McRae, C.; Fazio, E.; Hartsock, G.; Kelley, L.; Urbanski, S.; Russell, D.
  • Assessing the impact of mental health programs upon community: the perspectives of primary caregivers and consumers
    Mira, J.J.; Fernandez‐Gilinoj, E.; Lorenzo, S.
  • Prevalence and impact of caregiving: a detailed comparison between dementia and non‐dementia caregivers
    Ory, M.; Hoffman, R.; Yee, J.; Tennstedt, S.; Schulz, R.
  • Development and Validation of the Carer Well‐Being and Support (CWS) Questionnaire: Report to the National Co‐ordinating Service for the National Institute for Health Research Service Delivery and Organisation Programme
    Quirk, A.; Smith, S.C.; Hamilton, S.; Lamping, D.L.; Lelliott, P.; Stahl, D.; Pinfold, V.; Andiappan, M.
  • Who Cares? The Experiences of Mental Health Carers Accessing Services and Information
    Rethink
  • Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates and causes
    Schulz, R.; O'Brien, A.T.; Bookwala, J.; Fleissner, K.
  • Assessing health status and quality of life instruments: attributes and review criteria
    Scientific Advisory Committee of the Medical Outcomes Trust
  • Development of a new measure of health‐related quality of life for people with dementia: DEMQOL
    Smith, S.C.; Lamping, D.L.; Banerjee, S.; Harwood, R.H.; Foley, B.; Smith, P.; Cook, J.C.; Murray, J.; Prince, M.; Levin, M.; Mann, A.; Knapp, M.
  • Health Measurement Scales: A Practical Guide to Their Development and Use
    Streiner, D.L.; Norman, G.R.
  • Consequences for caregivers of patients with severe mental illness: the development of the involvement evaluation questionnaire
    van Wijngaarden, B.
  • SF‐36 Physical and Mental Component Summary Measures: A User's Manual
    Ware, J.E.; Kosinski, M.; Keller, S.D.
  • SF‐36 Health Survey Manual and Interpretation Guide
    Ware, J.E.; Snow, K.K.; Kosinski, M.; Gandek, B.
  • MAP‐R for Windows: Multitrait/multi‐Item Analysis Program – Revised User's Guide Version 1
    Ware, J.E.; Harris, W.J.; Gandek, B.; Rogers, B.W.; Reese, P.R.