Consumer involvement in health research: fact or fiction?

Consumer involvement in health research: fact or fiction? Consumer involvement is now firmly established as National Health Service (NHS) R&D policy. This study identified the range and diversity of current NHS research projects involving consumers within an NHS region, to investigate the extent to which the policy is being implemented. Trust R&D directors and managers were surveyed and the National Research Register scrutinized. Researchers were found to be involving consumers in research in less than a third of trusts in the region. Difficulties were encountered in categorising research activities and the level of consumer involvement, suggesting that more precision in describing consumer involvement in the research process is necessary. Researchers had concerns about the practicalities of involving consumers and expressed a need for more direction and resources. Makes recommendations for trust management to facilitate more active involvement of consumers in research. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png British Journal of Clinical Governance Emerald Publishing

Consumer involvement in health research: fact or fiction?

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Publisher
Emerald Publishing
Copyright
Copyright © 2002 MCB UP Ltd. All rights reserved.
ISSN
1466-4100
D.O.I.
10.1108/14664100210427606
Publisher site
See Article on Publisher Site

Abstract

Consumer involvement is now firmly established as National Health Service (NHS) R&D policy. This study identified the range and diversity of current NHS research projects involving consumers within an NHS region, to investigate the extent to which the policy is being implemented. Trust R&D directors and managers were surveyed and the National Research Register scrutinized. Researchers were found to be involving consumers in research in less than a third of trusts in the region. Difficulties were encountered in categorising research activities and the level of consumer involvement, suggesting that more precision in describing consumer involvement in the research process is necessary. Researchers had concerns about the practicalities of involving consumers and expressed a need for more direction and resources. Makes recommendations for trust management to facilitate more active involvement of consumers in research.

Journal

British Journal of Clinical GovernanceEmerald Publishing

Published: Jun 1, 2002

Keywords: National Health Service; R&D; User studies

References

  • About Science
    Barnes, B
  • Who are you, and who are we? Looking through some key words
    Herxheimer, A.; Goodare, H
  • Minority ethnic community participation in needs assessment and service development in primary care: perceptions of Pakistani and Bangladeshi people about psychological distress
    Kai, J.; Hedges, C

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