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Commentary on “Estimating the number of people with Down’s syndrome in Scotland and the cohort at elevated risk of early onset dementia”

Commentary on “Estimating the number of people with Down’s syndrome in Scotland and the cohort at... PurposeThe purpose of this paper is to consider the implications for people with Down’s syndrome and their families of identifying those people who are at risk of developing dementia from the research study “Estimating the number of people with Down’s syndrome in Scotland and the cohort at elevated risk of early onset dementia”.Design/methodology/approachThe commentary is based on a review of the associated literature.FindingsEstimating the numbers is important but has serious implications for people who have an elevated risk and their families. Preparation and ongoing support and planning are vital to ensure that quality of life is maintained as dementia is identified and progresses.Originality/valueThe commentary considers the research presented from a practitioner perspective. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Tizard Learning Disability Review Emerald Publishing

Commentary on “Estimating the number of people with Down’s syndrome in Scotland and the cohort at elevated risk of early onset dementia”

Dodd, Karen
Tizard Learning Disability Review , Volume 22 (3): 5 – Jul 3, 2017
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Publisher
Emerald Publishing
Copyright
Copyright © Emerald Group Publishing Limited
ISSN
1359-5474
DOI
10.1108/TLDR-04-2017-0019
Publisher site
See Article on Publisher Site

Abstract

PurposeThe purpose of this paper is to consider the implications for people with Down’s syndrome and their families of identifying those people who are at risk of developing dementia from the research study “Estimating the number of people with Down’s syndrome in Scotland and the cohort at elevated risk of early onset dementia”.Design/methodology/approachThe commentary is based on a review of the associated literature.FindingsEstimating the numbers is important but has serious implications for people who have an elevated risk and their families. Preparation and ongoing support and planning are vital to ensure that quality of life is maintained as dementia is identified and progresses.Originality/valueThe commentary considers the research presented from a practitioner perspective.

Journal

Tizard Learning Disability Review – Emerald Publishing

Published: Jul 3, 2017

References

  • Psychologists’ clinical practices in assessing dementia in individuals with Down syndrome
  • Executive dysfunction and its association with personality and behaviour changes in the development of Alzheimer’s disease in adults with Down syndrome and mild to moderate learning disabilities
  • Clinical, social and ethical implications of changing life expectancy in Down syndrome