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Co-production of post-diagnostic psychosocial intervention with carers of people with intellectual disability and dementia

Co-production of post-diagnostic psychosocial intervention with carers of people with... This paper aims to underline the importance of using a collaborative approach when designing and adapting a post diagnostic psychosocial intervention of cognitive stimulation therapy (CST) for people with intellectual disability and dementia.Design/methodology/approachAs part of a service improvement, a manual of CST was adapted, for delivery in clinical practice. A qualitative co-production method allowed participants with a lived experience to provide regular feedback relating to the development of the adapted CST manual and intervention programme. This feedback was used to make continual development changes to the CST manual.FindingsThe study demonstrated co-production with those who provide care is valuable in adapting psychosocial therapies for people with an intellectual disability and dementia. Additional findings identified the need for carer education in ageing, dementia care and the physical health needs for older people with intellectual disability.Originality/valueTo the best of the authors’ knowledge, this is the first study that has used a co-production approach with families and carers in adapting a group therapy programme for people with an intellectual disability. This paper underlines the need for post diagnostic clinical interventions for people with dementia and those who provide care. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Advances in Mental Health and Intellectual Disabilities Emerald Publishing

Co-production of post-diagnostic psychosocial intervention with carers of people with intellectual disability and dementia

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Publisher
Emerald Publishing
Copyright
© Emerald Publishing Limited
ISSN
2044-1282
eISSN
2044-1282
DOI
10.1108/amhid-01-2022-0006
Publisher site
See Article on Publisher Site

Abstract

This paper aims to underline the importance of using a collaborative approach when designing and adapting a post diagnostic psychosocial intervention of cognitive stimulation therapy (CST) for people with intellectual disability and dementia.Design/methodology/approachAs part of a service improvement, a manual of CST was adapted, for delivery in clinical practice. A qualitative co-production method allowed participants with a lived experience to provide regular feedback relating to the development of the adapted CST manual and intervention programme. This feedback was used to make continual development changes to the CST manual.FindingsThe study demonstrated co-production with those who provide care is valuable in adapting psychosocial therapies for people with an intellectual disability and dementia. Additional findings identified the need for carer education in ageing, dementia care and the physical health needs for older people with intellectual disability.Originality/valueTo the best of the authors’ knowledge, this is the first study that has used a co-production approach with families and carers in adapting a group therapy programme for people with an intellectual disability. This paper underlines the need for post diagnostic clinical interventions for people with dementia and those who provide care.

Journal

Advances in Mental Health and Intellectual Disabilities – Emerald Publishing

Published: Oct 21, 2022

Keywords: Collaboration; Carer; Ageing; Learning disability; Alzheimer’s disease; Cognitive stimulation therapy

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