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Access to palliative care services by people with learning disabilities: is there equity?

Access to palliative care services by people with learning disabilities: is there equity? This paper explores access to palliative care services by people with learning disabilities. It is based on a study of specialist palliative care professionals in London, involving 32 semi‐structured interviews and 543 postal questionnaires. We focus on one aspect of the findings, related to the current use of specialist palliative care services by people with learning disabilities. The results indicate that such services are under‐used by this group. We discuss possible reasons for low referral rates, including late diagnosis and lack of understanding among both learning disability services and palliative care services about each other's roles. We highlight the importance of collaboration, and the need for further staff training. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Advances in Mental Health and Learning Disabilities Emerald Publishing

Access to palliative care services by people with learning disabilities: is there equity?

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Publisher
Emerald Publishing
Copyright
Copyright © 2008 Emerald Group Publishing Limited. All rights reserved.
ISSN
1753-0180
DOI
10.1108/17530180200800017
Publisher site
See Article on Publisher Site

Abstract

This paper explores access to palliative care services by people with learning disabilities. It is based on a study of specialist palliative care professionals in London, involving 32 semi‐structured interviews and 543 postal questionnaires. We focus on one aspect of the findings, related to the current use of specialist palliative care services by people with learning disabilities. The results indicate that such services are under‐used by this group. We discuss possible reasons for low referral rates, including late diagnosis and lack of understanding among both learning disability services and palliative care services about each other's roles. We highlight the importance of collaboration, and the need for further staff training.

Journal

Advances in Mental Health and Learning DisabilitiesEmerald Publishing

Published: Jun 1, 2008

Keywords: Learning disabilities; Palliative care; Access to health care; Equity of services; Survey

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