Pain management strategies for effective coping with Sickle Cell Disease: The perspective of patients in Ghana

Pain management strategies for effective coping with Sickle Cell Disease: The perspective of... Scandinavian Journal of Pain 12 (2016) 117–124Contents lists available at ScienceDirectScandinavian Journal of Painjournal homepage: www.ScandinavianJournalPain.comAbstracts of free presentations at the 40th annual scientific meeting ofthe Scandinavian Association for the Study of Pain, Reykjavik, IcelandMay 26–27, 2016Pain management strategies for effectivecoping with Sickle Cell Disease: The perspectiveof patients in GhanaV.A. Adzika a,∗ , D. Ayim-Aboagye a , T. Gordh baRegent University of Science and Technology Accra,Ghanab Akademiska Sjukhuset, University of Uppsala,Uppsala, SwedenE-mail address: Vincent.adzika@regentghana.net (V.A. Adzika),desmond.ayim-aboagye@regent.edu.gh (D. Ayim-Aboagye),torsten.gordh@akademiska.se (T. Gordh).Aims: Prevalence of Sickle Cell Disease (SCD) is high in Ghanabut not much is known in terms of research into non-medical strategies for managing and coping with the pain associated with SCD.This study was carried out to examine effective non-medical relatedstrategies patients use to cope and manage their SCD condition.Methods: SCD patients (387) at the Korle-bu Teaching Hospital (Sickle Cell Clinic), consisting of 180 males and 204 femalesbetween 18 and 65 years old years participated in the study. Across-sectional research design was used in which participantscompleted 9 questionnaires on pain, non-medical coping andmanagement strategies, anxiety, and depression.Results: Over 90% of participants reported that pains associatedwith SCD were the main reason for seeking treatment in SCD crisis.In terms of non-medical related coping strategies, attending a placeof worship and praying were the main coping strategies used in SCDcrises, suggesting that patients’ beliefs, particularly in a supernatural being, served as a mitigating factor in the process of coping withthe pain associated with SCD crisis. Also, avoidance and withdrawal from people and social activities were reported to be strategiesused to cope with the pain associated with SCD crisis. Results ofmultiple regression analysis showed that socio-demographic characteristics contributed to the variance in the pain associated withSCD.Conclusion: This study indicates that non-medical strategies,such as religious beliefs and psychosocial actions, are importantfactors for patients in Ghana for their coping and managementDOI of refers to article: http://dx.doi.org/10.1016/j.sjpain.2016.05.024.1877-8860/of the pains associated with SCD. This knowledge may add to theunderstanding of the SCD-patients’ situation.http://dx.doi.org/10.1016/j.sjpain.2016.05.005PEARL – Pain in early life. A new network forresearch and educationR.D. Andersen a , A. Axelin b , M. Eriksson c ,G. Kristjánsdóttir d,∗aTelemark Hospital, Skien, NorwayUniversity of Turku, Turku, Finlandc Örebro University, Örebro, Swedend University of Iceland, Reykjavik, IcelandE-mail address: gkrist@hi.is (G. Kristjánsdóttir).bAims: To establish a network for research and education and toprovide expert knowledge to parents and health care professionalsabout pain in early life.Methods: In November 2014 a group of Nordic researchers andresearch students, committed to the field of pain in early life, gathered for an open lecture day and workshop in Örebro, Sweden.Inspired by the work of the Canadian initiative PICH – Pain In ChildHealth, the network formulated it’s vision: To be a stabile and competent research and training network within the area of pain inearly life. A first collaborate project was designed: “Translation,cultural adaptation and validation of the revised version of thePremature Infant Pain Profile (PIPP-R): An effort to improve painassessment in infants in the Nordic countries”.Results: Fourteen months later, in January 2016, the secondPEARL-meeting was held, in Oslo, Norway. The lecture day provided clinically active nurses and physicians from several countrieswith the latest findings on how to best manage pain in neonatal settings. The network which now consist of 18 researchersfrom different professions and academic levels presents itself ona five-language website: www.pearl.direct. The PIPP-R project hasprogressed according to the plan. The PIPP-R is translated into Finnish, Icelandic, Norwegian and Swedish. The cultural adaptationand validation should be finished in fall 2016. The members workon and plan for further collaborate projects. The next two stepsare to translate and distribute educational material for parents viaInternet and social media, and to establish a research and masters course about pain in early life. The work has been secured http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Scandinavian Journal of Pain de Gruyter

Pain management strategies for effective coping with Sickle Cell Disease: The perspective of patients in Ghana

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de Gruyter
Copyright
© 2016 Scandinavian Association for the Study of Pain
ISSN
1877-8860
eISSN
1877-8879
D.O.I.
10.1016/j.sjpain.2016.05.005
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Abstract

Scandinavian Journal of Pain 12 (2016) 117–124Contents lists available at ScienceDirectScandinavian Journal of Painjournal homepage: www.ScandinavianJournalPain.comAbstracts of free presentations at the 40th annual scientific meeting ofthe Scandinavian Association for the Study of Pain, Reykjavik, IcelandMay 26–27, 2016Pain management strategies for effectivecoping with Sickle Cell Disease: The perspectiveof patients in GhanaV.A. Adzika a,∗ , D. Ayim-Aboagye a , T. Gordh baRegent University of Science and Technology Accra,Ghanab Akademiska Sjukhuset, University of Uppsala,Uppsala, SwedenE-mail address: Vincent.adzika@regentghana.net (V.A. Adzika),desmond.ayim-aboagye@regent.edu.gh (D. Ayim-Aboagye),torsten.gordh@akademiska.se (T. Gordh).Aims: Prevalence of Sickle Cell Disease (SCD) is high in Ghanabut not much is known in terms of research into non-medical strategies for managing and coping with the pain associated with SCD.This study was carried out to examine effective non-medical relatedstrategies patients use to cope and manage their SCD condition.Methods: SCD patients (387) at the Korle-bu Teaching Hospital (Sickle Cell Clinic), consisting of 180 males and 204 femalesbetween 18 and 65 years old years participated in the study. Across-sectional research design was used in which participantscompleted 9 questionnaires on pain, non-medical coping andmanagement strategies, anxiety, and depression.Results: Over 90% of participants reported that pains associatedwith SCD were the main reason for seeking treatment in SCD crisis.In terms of non-medical related coping strategies, attending a placeof worship and praying were the main coping strategies used in SCDcrises, suggesting that patients’ beliefs, particularly in a supernatural being, served as a mitigating factor in the process of coping withthe pain associated with SCD crisis. Also, avoidance and withdrawal from people and social activities were reported to be strategiesused to cope with the pain associated with SCD crisis. Results ofmultiple regression analysis showed that socio-demographic characteristics contributed to the variance in the pain associated withSCD.Conclusion: This study indicates that non-medical strategies,such as religious beliefs and psychosocial actions, are importantfactors for patients in Ghana for their coping and managementDOI of refers to article: http://dx.doi.org/10.1016/j.sjpain.2016.05.024.1877-8860/of the pains associated with SCD. This knowledge may add to theunderstanding of the SCD-patients’ situation.http://dx.doi.org/10.1016/j.sjpain.2016.05.005PEARL – Pain in early life. A new network forresearch and educationR.D. Andersen a , A. Axelin b , M. Eriksson c ,G. Kristjánsdóttir d,∗aTelemark Hospital, Skien, NorwayUniversity of Turku, Turku, Finlandc Örebro University, Örebro, Swedend University of Iceland, Reykjavik, IcelandE-mail address: gkrist@hi.is (G. Kristjánsdóttir).bAims: To establish a network for research and education and toprovide expert knowledge to parents and health care professionalsabout pain in early life.Methods: In November 2014 a group of Nordic researchers andresearch students, committed to the field of pain in early life, gathered for an open lecture day and workshop in Örebro, Sweden.Inspired by the work of the Canadian initiative PICH – Pain In ChildHealth, the network formulated it’s vision: To be a stabile and competent research and training network within the area of pain inearly life. A first collaborate project was designed: “Translation,cultural adaptation and validation of the revised version of thePremature Infant Pain Profile (PIPP-R): An effort to improve painassessment in infants in the Nordic countries”.Results: Fourteen months later, in January 2016, the secondPEARL-meeting was held, in Oslo, Norway. The lecture day provided clinically active nurses and physicians from several countrieswith the latest findings on how to best manage pain in neonatal settings. The network which now consist of 18 researchersfrom different professions and academic levels presents itself ona five-language website: www.pearl.direct. The PIPP-R project hasprogressed according to the plan. The PIPP-R is translated into Finnish, Icelandic, Norwegian and Swedish. The cultural adaptationand validation should be finished in fall 2016. The members workon and plan for further collaborate projects. The next two stepsare to translate and distribute educational material for parents viaInternet and social media, and to establish a research and masters course about pain in early life. The work has been secured

Journal

Scandinavian Journal of Painde Gruyter

Published: Jul 1, 2016

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