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Does the Regulation of Medical Research in the Netherlands Adequately Protect Privacy Rights After Death?

Does the Regulation of Medical Research in the Netherlands Adequately Protect Privacy Rights... There is a growing interest in scientific research using data and bodily material for medical purposes. In 2007 and 2011, results were published of studies on the genetic properties of the DNA of a deceased person. This case raises the question whether a deceased is entitled to legal protection, more specifically privacy protection in scientific research in the Netherlands. This article outlines the Dutch legal framework for scientific research involving historical data and bodily material as well as bodily material and parts of the deceased. These considerations do indicate that further legislation will be required, specifically with respect to the proper use of bodily material of the deceased and subsequent publication of the results. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png European Journal of Comparative Law and Governance Brill

Does the Regulation of Medical Research in the Netherlands Adequately Protect Privacy Rights After Death?

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References (2)

Publisher
Brill
Copyright
© 2014 by Koninklijke Brill NV, Leiden, The Netherlands
Subject
Articles
ISSN
2213-4506
eISSN
2213-4514
DOI
10.1163/22134514-00102005
Publisher site
See Article on Publisher Site

Abstract

There is a growing interest in scientific research using data and bodily material for medical purposes. In 2007 and 2011, results were published of studies on the genetic properties of the DNA of a deceased person. This case raises the question whether a deceased is entitled to legal protection, more specifically privacy protection in scientific research in the Netherlands. This article outlines the Dutch legal framework for scientific research involving historical data and bodily material as well as bodily material and parts of the deceased. These considerations do indicate that further legislation will be required, specifically with respect to the proper use of bodily material of the deceased and subsequent publication of the results.

Journal

European Journal of Comparative Law and GovernanceBrill

Published: May 12, 2014

Keywords: scientific research; deceased; post mortem privacy

There are no references for this article.