Caring for Children with Severe Disabilities: Boundaried and Relational Rights

Caring for Children with Severe Disabilities: Boundaried and Relational Rights Caring for Children with Severe Disabilities: Boundaried and Relational Rights JO BRIDGEMAN Sussex Law School, University of Sussex I have known David all his life. I know when he is happy, when he is sad or when he is in pain. I thought it was disgusting that these doctors did not take that into account. . . . Yes, David does have a different quality of life, but so does every- one. I don’t have the same quality of life as a film star jetting round the world. David has never walked, so he doesn’t know what it’s like. Being handicapped and being in pain are different things. . . . Yes, I was angry. I was angry for David because I knew him best and I needed to stick up for him. I needed to give him a voice. (Carol Glass quoted in Day, 2004) We need to take decisions away from the side of the hospital bed. Life and death decisions are a human rights issue not just a medical issue. Afuller and more comprehensive picture will be gained in the context of the individual’s life within the family or wider community. . . . The http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png The International Journal of Children's Rights Brill

Caring for Children with Severe Disabilities: Boundaried and Relational Rights

The International Journal of Children's Rights, Volume 13 (1-2): 99 – Jan 1, 2005

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Publisher
Brill
Copyright
© 2005 Koninklijke Brill NV, Leiden, The Netherlands
ISSN
0927-5568
eISSN
1571-8182
D.O.I.
10.1163/1571818054545259
Publisher site
See Article on Publisher Site

Abstract

Caring for Children with Severe Disabilities: Boundaried and Relational Rights JO BRIDGEMAN Sussex Law School, University of Sussex I have known David all his life. I know when he is happy, when he is sad or when he is in pain. I thought it was disgusting that these doctors did not take that into account. . . . Yes, David does have a different quality of life, but so does every- one. I don’t have the same quality of life as a film star jetting round the world. David has never walked, so he doesn’t know what it’s like. Being handicapped and being in pain are different things. . . . Yes, I was angry. I was angry for David because I knew him best and I needed to stick up for him. I needed to give him a voice. (Carol Glass quoted in Day, 2004) We need to take decisions away from the side of the hospital bed. Life and death decisions are a human rights issue not just a medical issue. Afuller and more comprehensive picture will be gained in the context of the individual’s life within the family or wider community. . . . The

Journal

The International Journal of Children's RightsBrill

Published: Jan 1, 2005

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