Get 20M+ Full-Text Papers For Less Than $1.50/day. Start a 14-Day Trial for You or Your Team.

Learn More →

Patient Data Ownership

Patient Data Ownership Letters 4. Guérin C, Reignier J, Richard JC, et al; PROSEVA Study Group. Prone 1. Mikk KA, Sleeper HA, Topol EJ. The pathway to patient data ownership and positioning in severe acute respiratory distress syndrome. N Engl J Med. 2013; better health. JAMA. 2017;318(15):1433-1434. 368(23):2159-2168. 2. Contreras JL. Genetic property. Georgetown Law J. 2016;105(1):1-54. 5. Reske AW, Costa EL, Reske AP, et al. Bedside estimation of nonaerated lung 3. Evans BJ. Much ado about data ownership. Harvard J Law Tech. tissue using blood gas analysis. Crit Care Med. 2013;41(3):732-743. 2011;25(1):69-130. 6. Roan E, Wilhelm K, Bada A, et al. Hyperoxia alters the mechanical properties of alveolar epithelial cells. Am J Physiol Lung Cell Mol Physiol. 2012;302(12): L1235-L1241. In Reply Mr Contreras and colleagues express concern that providing individuals with control over their complete, longitudinal health data could result in less-effective scien- tific research because individuals may not choose to share To the Editor The Viewpoint by Ms Mikk and colleagues their data. However, multiple studies have shown that indi- aimed to improve patient engagement and health care infor- viduals are far more willing to share their medical data for matics and to recommend technical improvements to elec- 1,2 tronic http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png JAMA American Medical Association

Loading next page...
 
/lp/american-medical-association/patient-data-ownership-w3Dw0CTnLY
Publisher
American Medical Association
Copyright
Copyright 2018 American Medical Association. All Rights Reserved.
ISSN
0098-7484
eISSN
1538-3598
DOI
10.1001/jama.2017.21672
pmid
29509858
Publisher site
See Article on Publisher Site

Abstract

Letters 4. Guérin C, Reignier J, Richard JC, et al; PROSEVA Study Group. Prone 1. Mikk KA, Sleeper HA, Topol EJ. The pathway to patient data ownership and positioning in severe acute respiratory distress syndrome. N Engl J Med. 2013; better health. JAMA. 2017;318(15):1433-1434. 368(23):2159-2168. 2. Contreras JL. Genetic property. Georgetown Law J. 2016;105(1):1-54. 5. Reske AW, Costa EL, Reske AP, et al. Bedside estimation of nonaerated lung 3. Evans BJ. Much ado about data ownership. Harvard J Law Tech. tissue using blood gas analysis. Crit Care Med. 2013;41(3):732-743. 2011;25(1):69-130. 6. Roan E, Wilhelm K, Bada A, et al. Hyperoxia alters the mechanical properties of alveolar epithelial cells. Am J Physiol Lung Cell Mol Physiol. 2012;302(12): L1235-L1241. In Reply Mr Contreras and colleagues express concern that providing individuals with control over their complete, longitudinal health data could result in less-effective scien- tific research because individuals may not choose to share To the Editor The Viewpoint by Ms Mikk and colleagues their data. However, multiple studies have shown that indi- aimed to improve patient engagement and health care infor- viduals are far more willing to share their medical data for matics and to recommend technical improvements to elec- 1,2 tronic

Journal

JAMAAmerican Medical Association

Published: Mar 6, 2018

References