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A. Goldenberg, R. Sharp (2012)
The ethical hazards and programmatic challenges of genomic newborn screening.JAMA, 307 5
J. Botkin, E. Rothwell, Rebecca Anderson, L. Stark, A. Goldenberg, M. Lewis, Matthew Burbank, B. Wong (2012)
Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for ResearchPediatrics, 129
B. Tarini, A. Goldenberg, D. Singer, S. Clark, A. Butchart, M. Davis (2009)
Not without my Permission: Parents’ Willingness to Permit Use of Newborn Screening Samples for ResearchPublic Health Genomics, 13
B. Kuehn (2013)
After 50 years, newborn screening continues to yield public health gains.JAMA, 309 12
Striking a balance between public health research based on residual newborn screening blood spots and preserving parental rights to consent their use is the focus of this Viewpoint.
JAMA – American Medical Association
Published: Jul 7, 2015
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