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Health Care Professionals and Intersex Conditions

Health Care Professionals and Intersex Conditions COMMENTARY Joel Frader, MD, MA; Priscilla Alderson, PhD; Adrienne Asch, PhD; Cassandra Aspinall, MSW, ACSW; Dena Davis, JD, PhD; Alice Dreger, PhD; James Edwards, PhD; Ellen K. Feder, PhD; Arthur Frank, PhD; Lisa Abelow Hedley, JD; Eva Kittay, PhD; Jeffrey Marsh, MD; Paul Steven Miller, LLB; Wendy Mouradian, MD; Hilde Nelson, PhD; Erik Parens, PhD s part of a larger project, a multidisciplinary group convened by The Hastings Center, Garrison, NY, met to consider medical, psychosocial, and ethical issues associated with the care of children born with atypical genitalia or later found to have other condi- A tions now commonly grouped together as “intersex.” These children may have con- genital adrenal hyperplasia, gonadal dysgenesis, hypospadias, partial or complete androgen insen- sitivity syndrome, etc. This commentary reflects the deliberations of the group, which concluded that none of the appearance-altering surgeries need to be performed quickly; families with chil- dren with intersex conditions require multidisciplinary care; children with intersex conditions de- serve to know the truth about their bodies; families and health care professionals will benefit from rigorous longitudinal studies; and health care professionals need additional training about inter- sex conditions and sexual health generally. Parents and physicians of children with http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png JAMA Pediatrics American Medical Association

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Publisher
American Medical Association
Copyright
Copyright 2004 American Medical Association. All Rights Reserved. Applicable FARS/DFARS Restrictions Apply to Government Use.
ISSN
2168-6203
eISSN
2168-6211
DOI
10.1001/archpedi.158.5.426
pmid
15123472
Publisher site
See Article on Publisher Site

Abstract

COMMENTARY Joel Frader, MD, MA; Priscilla Alderson, PhD; Adrienne Asch, PhD; Cassandra Aspinall, MSW, ACSW; Dena Davis, JD, PhD; Alice Dreger, PhD; James Edwards, PhD; Ellen K. Feder, PhD; Arthur Frank, PhD; Lisa Abelow Hedley, JD; Eva Kittay, PhD; Jeffrey Marsh, MD; Paul Steven Miller, LLB; Wendy Mouradian, MD; Hilde Nelson, PhD; Erik Parens, PhD s part of a larger project, a multidisciplinary group convened by The Hastings Center, Garrison, NY, met to consider medical, psychosocial, and ethical issues associated with the care of children born with atypical genitalia or later found to have other condi- A tions now commonly grouped together as “intersex.” These children may have con- genital adrenal hyperplasia, gonadal dysgenesis, hypospadias, partial or complete androgen insen- sitivity syndrome, etc. This commentary reflects the deliberations of the group, which concluded that none of the appearance-altering surgeries need to be performed quickly; families with chil- dren with intersex conditions require multidisciplinary care; children with intersex conditions de- serve to know the truth about their bodies; families and health care professionals will benefit from rigorous longitudinal studies; and health care professionals need additional training about inter- sex conditions and sexual health generally. Parents and physicians of children with

Journal

JAMA PediatricsAmerican Medical Association

Published: May 1, 2004

References