ARTICLE Experience of an Adolescent Living With and Dying of Cancer Shauna C. Flavelle, MD Objective: To provide a unified description of an ado- Main Outcome Measures: Identification and clus- lescent’s experience of living with and dying of cancer. tering of key themes to capture the essence of his expe- rience. Design: Qualitative analysis using phenomenological methods. Results: Five main themes that surfaced during analy- sis of the journal were adolescent development, escape Setting: Izaak Walton Killam Health Centre, Halifax, from illness, changing relationships, symptoms, and spiri- Nova Scotia, Canada. tuality. Patient: A 15-year-old boy who was diagnosed as hav- Conclusion: A single case study can provide valuable ing osteosarcoma in 2003 and died of his disease 1 year information in a field such as pediatric palliative care in later. which the patient’s perspective may be difficult to ac- cess or ascertain. Intervention: Analysis of his 90-page journal that spanned 3 months just before his death. Arch Pediatr Adolesc Med. 2011;165(1):28-32 EDIATRIC PALLIATIVE CARE therapeutic agents but had a poor re- aims to provide the best qual- sponse. His first journal entry on Febru- ity of life for infants, chil- ary 3, 2004, was 1 year after his initial
JAMA Pediatrics – American Medical Association
Published: Jan 1, 2011
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