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Experience of an Adolescent Living With and Dying of Cancer

Experience of an Adolescent Living With and Dying of Cancer ARTICLE Experience of an Adolescent Living With and Dying of Cancer Shauna C. Flavelle, MD Objective: To provide a unified description of an ado- Main Outcome Measures: Identification and clus- lescent’s experience of living with and dying of cancer. tering of key themes to capture the essence of his expe- rience. Design: Qualitative analysis using phenomenological methods. Results: Five main themes that surfaced during analy- sis of the journal were adolescent development, escape Setting: Izaak Walton Killam Health Centre, Halifax, from illness, changing relationships, symptoms, and spiri- Nova Scotia, Canada. tuality. Patient: A 15-year-old boy who was diagnosed as hav- Conclusion: A single case study can provide valuable ing osteosarcoma in 2003 and died of his disease 1 year information in a field such as pediatric palliative care in later. which the patient’s perspective may be difficult to ac- cess or ascertain. Intervention: Analysis of his 90-page journal that spanned 3 months just before his death. Arch Pediatr Adolesc Med. 2011;165(1):28-32 EDIATRIC PALLIATIVE CARE therapeutic agents but had a poor re- aims to provide the best qual- sponse. His first journal entry on Febru- ity of life for infants, chil- ary 3, 2004, was 1 year after his initial http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png JAMA Pediatrics American Medical Association

Experience of an Adolescent Living With and Dying of Cancer

JAMA Pediatrics , Volume 165 (1) – Jan 1, 2011

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Publisher
American Medical Association
Copyright
Copyright 2011 American Medical Association. All Rights Reserved. Applicable FARS/DFARS Restrictions Apply to Government Use.
ISSN
2168-6203
eISSN
2168-6211
DOI
10.1001/archpediatrics.2010.249
pmid
21199977
Publisher site
See Article on Publisher Site

Abstract

ARTICLE Experience of an Adolescent Living With and Dying of Cancer Shauna C. Flavelle, MD Objective: To provide a unified description of an ado- Main Outcome Measures: Identification and clus- lescent’s experience of living with and dying of cancer. tering of key themes to capture the essence of his expe- rience. Design: Qualitative analysis using phenomenological methods. Results: Five main themes that surfaced during analy- sis of the journal were adolescent development, escape Setting: Izaak Walton Killam Health Centre, Halifax, from illness, changing relationships, symptoms, and spiri- Nova Scotia, Canada. tuality. Patient: A 15-year-old boy who was diagnosed as hav- Conclusion: A single case study can provide valuable ing osteosarcoma in 2003 and died of his disease 1 year information in a field such as pediatric palliative care in later. which the patient’s perspective may be difficult to ac- cess or ascertain. Intervention: Analysis of his 90-page journal that spanned 3 months just before his death. Arch Pediatr Adolesc Med. 2011;165(1):28-32 EDIATRIC PALLIATIVE CARE therapeutic agents but had a poor re- aims to provide the best qual- sponse. His first journal entry on Febru- ity of life for infants, chil- ary 3, 2004, was 1 year after his initial

Journal

JAMA PediatricsAmerican Medical Association

Published: Jan 1, 2011

References

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