TY - JOUR
AU1 - Carrougher, G J
AU2 - Cai, C
AU3 - Simko, L C
AU4 - Epperson, K
AU5 - Holavanahalli, R K
AU6 - Overton, C
AU7 - Schneider, J C
AU8 - Herndon, D N
AU9 - Kowalske, K
AU1 - Gibran, N S
AB - Abstract Introduction Health literacy represents the degree to which individuals have the capacity to obtain, process and understand basic health information to make appropriate decisions. Limited health literacy affects people of all ages, races, educational and socioeconomic levels. Nearly 90% of adults have been reported to have difficulty using health information that is currently available within US healthcare facilities. The purpose of this report is to share the comprehensive process by which one US investigative group develops and tests burn-related patient education materials with the ultimate goal of improved knowledge translation. Methods The process for developing and testing burn care educational factsheets was developed in 2011 and refined in 2012. Our 13-step process results in consumer-friendly information that is current, evidence-based and/or consensus-driven, and ultimately tested by those who will benefit - burn survivors, parents and family members. The final product is made available in both English and Spanish at or below an 8th grade reading level and is Section 508 compliant (federal mandate that all electronic and information technology developed, procured, maintained, or used by the federal government be accessible to people with disabilities). Results Over the past 5 years, our group has produced and/or updated 14 educational factsheets. Each is available on a website in the format of web text and printable PDF. As a metric for product dissemination, the number of unique views for each factsheet is monitored. The table provides a list of available factsheets with the corresponding number of ‘views’ and the year in which each informational sheet was developed and/or updated. To ensure that all materials are current, each factsheet is reviewed and updated by experts and consumers every 5–6 years. Conclusions The evidence-based process and strategies for making relevant health information accessible and understandable for our patient population has shown promising results. This process is one step to ensure that we have made available information that ultimately, leads to improved health literacy and knowledge translation for burn survivors and their family members. Applicability of Research to Practice This report outlines the process and strategies that can be used and adopted by others involved in developing burn-care information. Dissemination of burn care factsheets (as of 8-30-2017) . Factsheet-short title . Year developed (Year revised) . No. of unique views . Sleep problems 2011 (2015) 5,608 Psychological distress 2011 (2016) 21,502 Understanding and improving body image 2011 (2017) 58,180 Pain management 2011 (2016) 129,214 Social interaction 2011 (2017) 2,426 Employment after injury 2011 (2016) 3,309 Wound & Scar management 2011 (2016) 146,873 Itchy skin 2012 (2016) 160,158 Building resilience in children 2015 557 Returning to school 2015 589 Exercise after injury 2015 14,963 Healthy eating for adults 2016 1,305 Healthy eating for kids 2016 430 PTSD 2017 255 Dissemination of burn care factsheets (as of 8-30-2017) . Factsheet-short title . Year developed (Year revised) . No. of unique views . Sleep problems 2011 (2015) 5,608 Psychological distress 2011 (2016) 21,502 Understanding and improving body image 2011 (2017) 58,180 Pain management 2011 (2016) 129,214 Social interaction 2011 (2017) 2,426 Employment after injury 2011 (2016) 3,309 Wound & Scar management 2011 (2016) 146,873 Itchy skin 2012 (2016) 160,158 Building resilience in children 2015 557 Returning to school 2015 589 Exercise after injury 2015 14,963 Healthy eating for adults 2016 1,305 Healthy eating for kids 2016 430 PTSD 2017 255 Open in new tab Dissemination of burn care factsheets (as of 8-30-2017) . Factsheet-short title . Year developed (Year revised) . No. of unique views . Sleep problems 2011 (2015) 5,608 Psychological distress 2011 (2016) 21,502 Understanding and improving body image 2011 (2017) 58,180 Pain management 2011 (2016) 129,214 Social interaction 2011 (2017) 2,426 Employment after injury 2011 (2016) 3,309 Wound & Scar management 2011 (2016) 146,873 Itchy skin 2012 (2016) 160,158 Building resilience in children 2015 557 Returning to school 2015 589 Exercise after injury 2015 14,963 Healthy eating for adults 2016 1,305 Healthy eating for kids 2016 430 PTSD 2017 255 Dissemination of burn care factsheets (as of 8-30-2017) . Factsheet-short title . Year developed (Year revised) . No. of unique views . Sleep problems 2011 (2015) 5,608 Psychological distress 2011 (2016) 21,502 Understanding and improving body image 2011 (2017) 58,180 Pain management 2011 (2016) 129,214 Social interaction 2011 (2017) 2,426 Employment after injury 2011 (2016) 3,309 Wound & Scar management 2011 (2016) 146,873 Itchy skin 2012 (2016) 160,158 Building resilience in children 2015 557 Returning to school 2015 589 Exercise after injury 2015 14,963 Healthy eating for adults 2016 1,305 Healthy eating for kids 2016 430 PTSD 2017 255 Open in new tab This content is only available as a PDF. © American Burn Association 2018. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com This article is published and distributed under the terms of the Oxford University Press, Standard Journals Publication Model (https://academic.oup.com/journals/pages/about_us/legal/notices) © American Burn Association 2018. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com
TI - 289 From Development to Utilization: Burn Injury Factsheets for Patient Education
JF - Journal of Burn Care & Research
DO - 10.1093/jbcr/iry006.211
DA - 2018-04-09
UR - https://www.deepdyve.com/lp/oxford-university-press/289-from-development-to-utilization-burn-injury-factsheets-for-patient-qGm0SJq0NF
SP - S113
EP - S114
VL - 39
IS - suppl_1
DP - DeepDyve
ER -