TY - JOUR
AU - Kremer, Jan AM
AB - Background: Patient participation is essential in developing high-quality guidelines but faces practical challenges. Evidence on timing, methods, evaluations, and outcomes of methodologies for patient participation in guideline development is lacking. Objective: To assess the feasibility of a wiki as a participatory tool for patients in the development of a guideline on infertility determined by (1) use of the wiki (number of page views and visitors), (2) benefits of the wiki (ie, number, content, and eligibility of the recommendations to be integrated into the guideline), and (3) patients’ facilitators of and barriers to adoption, and the potential challenges to be overcome in improving this wiki. Methods: To obtain initial content for the wiki, we conducted in-depth interviews (n = 12) with infertile patients. Transcripts from the interviews were translated into 90 draft recommendations. These were presented on a wiki. Over 7 months, infertile patients were invited through advertisements or mailings to formulate new or modify existing recommendations. After modifying the recommendations, we asked patients to select their top 5 or top 3 recommendations for each of 5 sections on fertility care. Finally, the guideline development group assessed the eligibility of the final set of recommendations within the scope of the 
TI - Feasibility of a Wiki as a Participatory Tool for Patients in Clinical Guideline Development
JF - Journal of Medical Internet Research
DO - 10.2196/jmir.2080
DA - 2012-10-26
UR - https://www.deepdyve.com/lp/unpaywall/feasibility-of-a-wiki-as-a-participatory-tool-for-patients-in-clinical-ESIm8SQ82h
DP - DeepDyve
ER -