Access the full text.
Sign up today, get DeepDyve free for 14 days.
D. Goodley, P. Clough (2004)
Community projects and excluded young people: reflections on a participatory narrative research approachInternational Journal of Inclusive Education, 8
E. Pellicano, Marc Stears (2011)
Bridging autism, science and society: moving toward an ethically informed approach to autism researchAutism Research, 4
E. Stone, M. Priestley (1996)
Parasites, pawns and partners: disability research and the role of non-disabled researchers.The British journal of sociology, 47 4
E. Pellicano, A. Dinsmore, T. Charman (2014)
What should autism research focus upon? Community views and priorities from the United KingdomAutism, 18
M. Waltz (2007)
The relationship of ethics to quality: a particular case of research in autismInternational Journal of Research & Method in Education, 30
Manuel Madriaga, D. Goodley (2010)
Moving beyond the minimum: socially just pedagogies and Asperger’s syndrome in UK higher educationInternational Journal of Inclusive Education, 14
M. Brosnan, Elizabeth Mills (2016)
The effect of diagnostic labels on the affective responses of college students towards peers with ‘Asperger’s Syndrome’ and ‘Autism Spectrum Disorder’Autism, 20
Andrea MacLeod, A. Lewis, C. Robertson (2014)
‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrumInternational Journal of Research & Method in Education, 37
S. Fletcher‐Watson, Jon Adams, Kabie Brook, T. Charman, L. Crane, J. Cusack, S. Leekam, D. Milton, J. Parr, E. Pellicano (2018)
Making the future together: Shaping autism research through meaningful participationAutism, 23
D. Milton (2014)
Autistic expertise: A critical reflection on the production of knowledge in autism studiesAutism, 18
D. Milton, M. Bracher (2013)
Autistics speak but are they heard
J. Vincent, Megan Potts, D. Fletcher, S. Hodges, Jenny Howells, A. Mitchell, Brett Mallon, T. Ledger (2017)
‘I think autism is like running on Windows while everyone else is a Mac’: using a participatory action research approach with students on the autistic spectrum to rearticulate autism and the lived experience of universityEducational Action Research, 25
J. Bergold, Stefan Thomas (2012)
Participatory Research Methods: A Methodological Approach in MotionHistorical Social Research, 13
C. Wright, S. Wright, Marissa Diener, J. Eaton (2014)
Autism spectrum disorder and the applied collaborative approach: a review of community based participatory research and participatory action research, 1
Andrea Cornwall, R. Jewkes (1995)
What is participatory research?Social science & medicine, 41 12
A. Macaulay (2016)
Participatory research: What is the history? Has the purpose changed?Family practice, 34 3
Nick Chown, Nick Beavan (2012)
Intellectually capable but socially excluded? A review of the literature and research on students with autism in further educationJournal of Further and Higher Education, 36
V. Hees, Tinneke Moyson, H. Roeyers (2015)
Higher Education Experiences of Students with Autism Spectrum Disorder: Challenges, Benefits and Support NeedsJournal of Autism and Developmental Disorders, 45
Susan Gabel, Maja Miskovic (2014)
Discourse and the containment of disability in higher education: an institutional analysisDisability & Society, 29
Forum Qualitative Sozialforschung/Forum: Qualitative Social Research, 13
(2018)
Aut2Engage Event: overview by Dr Laura Crane
Ardha Danieli, Carol Woodhams (2005)
Emancipatory Research Methodology and Disability: A CritiqueInternational Journal of Social Research Methodology, 8
The purpose of this paper is to address the benefits of a participatory approach to autism research, demonstrating the positive effects of giving autistic project assistants (PAs) the opportunity to design and undertake a project researching the experiences of autistic university students.Design/methodology/approachA participatory approach was implemented, engaging autistic university students as research assistants. All the research team except project co-ordinators were autistic. Undergraduate autistic students developed and conducted a set of semi-structured interviews, with two autistic alumni responsible for data analysis and both scheduling and moderating focus groups. Participation in dissemination of the findings was open to all.FindingsThe results included in this paper reflect a portion of the overall findings, specifically regarding the participatory approach. The findings of the study indicate the perceptions of respondents being interviewed by autistic researchers in relation to their shared understanding, facilitating positive feelings and a sense of rapport in the interview process. The PAs were able to improve their research skills through the project, which contributed constructively to their CV and allowed them to feel more positive about being autistic, and specifically about being an autistic researcher.Originality/valueThis paper is one of the first to discuss the challenges and benefits of including autistic participant researchers at all stages of the research project, including research design, data collection, analysis and dissemination, being co-written by both project co-ordinators and autistic project researchers.
Advances in Autism – Emerald Publishing
Published: Apr 16, 2019
Keywords: Autism; Higher education; Research design; Inclusion; Participatory research
Read and print from thousands of top scholarly journals.
Already have an account? Log in
Bookmark this article. You can see your Bookmarks on your DeepDyve Library.
To save an article, log in first, or sign up for a DeepDyve account if you don’t already have one.
Copy and paste the desired citation format or use the link below to download a file formatted for EndNote
Access the full text.
Sign up today, get DeepDyve free for 14 days.
All DeepDyve websites use cookies to improve your online experience. They were placed on your computer when you launched this website. You can change your cookie settings through your browser.