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Theme 9 Clinical trials and trial design

Theme 9 Clinical trials and trial design Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2019; 20(Suppl. S1): 262–288 between the Consortium’s research members and PALS CLT-01 The NEALS Consortium – a is substantiated by the increasing participation of PALS collaborative research organization in the organization’s research efforts. Since 1999, 125,286 PALS have participated in NEALS studies. In 2018 alone, 1 2 Tara C. Lincoln , Carly Allen 4,173 people with ALS participated in NEALS trials, up significantly from 1999’s participation (n=101). 1 2 NEALS, Lost Angeles, CA, USA, NEALS, Kansas City, MO, USA Discussion and conclusions: It is more critical than ever for healthcare professionals to underscore the importance of clinical research into the causes and treatments of ALS Email address for correspondence: and associated conditions. In this vision for the future, by tlincoln@neals.org involving more people in ALS research and ensuring that they and those around them are properly informed about Keywords: clinical trial, education, research the disease, public knowledge regarding rare disease research grows, allowing the research community to give back to the Background: NEALS is a non-profit organization that patient population through science breakthroughs and aims to successfully promote both research and awareness increased disease knowledge. of ALS, encouraging collaborations among clinicians, researchers, and http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Taylor & Francis

Theme 9 Clinical trials and trial design

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration , Volume 20 (sup1): 27 – Oct 31, 2019

Theme 9 Clinical trials and trial design

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration , Volume 20 (sup1): 27 – Oct 31, 2019

Abstract

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2019; 20(Suppl. S1): 262–288 between the Consortium’s research members and PALS CLT-01 The NEALS Consortium – a is substantiated by the increasing participation of PALS collaborative research organization in the organization’s research efforts. Since 1999, 125,286 PALS have participated in NEALS studies. In 2018 alone, 1 2 Tara C. Lincoln , Carly Allen 4,173 people with ALS participated in NEALS trials, up significantly from 1999’s participation (n=101). 1 2 NEALS, Lost Angeles, CA, USA, NEALS, Kansas City, MO, USA Discussion and conclusions: It is more critical than ever for healthcare professionals to underscore the importance of clinical research into the causes and treatments of ALS Email address for correspondence: and associated conditions. In this vision for the future, by tlincoln@neals.org involving more people in ALS research and ensuring that they and those around them are properly informed about Keywords: clinical trial, education, research the disease, public knowledge regarding rare disease research grows, allowing the research community to give back to the Background: NEALS is a non-profit organization that patient population through science breakthroughs and aims to successfully promote both research and awareness increased disease knowledge. of ALS, encouraging collaborations among clinicians, researchers, and

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References (22)

Publisher
Taylor & Francis
Copyright
© 2019 World Federation of Neurology on behalf of the Research Group on Motor Neuron Diseases
ISSN
2167-9223
eISSN
2167-8421
DOI
10.1080/21678421.2019.1646997
Publisher site
See Article on Publisher Site

Abstract

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2019; 20(Suppl. S1): 262–288 between the Consortium’s research members and PALS CLT-01 The NEALS Consortium – a is substantiated by the increasing participation of PALS collaborative research organization in the organization’s research efforts. Since 1999, 125,286 PALS have participated in NEALS studies. In 2018 alone, 1 2 Tara C. Lincoln , Carly Allen 4,173 people with ALS participated in NEALS trials, up significantly from 1999’s participation (n=101). 1 2 NEALS, Lost Angeles, CA, USA, NEALS, Kansas City, MO, USA Discussion and conclusions: It is more critical than ever for healthcare professionals to underscore the importance of clinical research into the causes and treatments of ALS Email address for correspondence: and associated conditions. In this vision for the future, by tlincoln@neals.org involving more people in ALS research and ensuring that they and those around them are properly informed about Keywords: clinical trial, education, research the disease, public knowledge regarding rare disease research grows, allowing the research community to give back to the Background: NEALS is a non-profit organization that patient population through science breakthroughs and aims to successfully promote both research and awareness increased disease knowledge. of ALS, encouraging collaborations among clinicians, researchers, and

Journal

Amyotrophic Lateral Sclerosis and Frontotemporal DegenerationTaylor & Francis

Published: Oct 31, 2019

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