Access the full text.
Sign up today, get DeepDyve free for 14 days.
R. Berenson, D. Kaye (2013)
Grading a physician's value--the misapplication of performance measurement.The New England journal of medicine, 369 22
V. Shavers (2007)
Measurement of socioeconomic status in health disparities research.Journal of the National Medical Association, 99 9
S. Brucker, C. Schumacher, C. Sohn, M. Rezai, M. Bamberg, D. Wallwiener (2008)
Benchmarking the quality of breast cancer care in a nationwide voluntary system: the first five-year results (2003–2007) from Germany as a proof of conceptBMC Cancer, 8
T. Luckett, M. King, Phyllis Butow, M. Oguchi, N. Rankin, M. Price, N. Hackl, G. Heading (2011)
Choosing between the EORTC QLQ-C30 and FACT-G for measuring health-related quality of life in cancer clinical research: issues, evidence and recommendations.Annals of oncology : official journal of the European Society for Medical Oncology, 22 10
V. Kavadas, J. Blazeby, T. Conroy, Orhan Sezer, Bernhard Holzner, Michael Koller, J. Buckels (2003)
Development of an EORTC disease-specific quality of life questionnaire for use in patients with liver metastases from colorectal cancer.European journal of cancer, 39 9
N. Martin, Laura Massey, C. Stowell, C. Bangma, A. Briganti, A. Bill-Axelson, M. Blute, J. Catto, Ronald Chen, A. D'Amico, G. Feick, J. Fitzpatrick, S. Frank, M. Froehner, M. Frydenberg, A. Glaser, M. Graefen, D. Hamstra, A. Kibel, N. Mendenhall, K. Moretti, J. Ramon, I. Roos, H. Sandler, F. Sullivan, D. Swanson, A. Tewari, A. Vickers, T. Wiegel, H. Huland (2014)
Defining a standard set of patient-centered outcomes for men with localized prostate cancer.European urology, 67 3
M. Morrow, K. Zee, Lawrence Solin, N. Houssami, M. Chávez-MacGregor, Jay Harris, J. Horton, Shelley Hwang, Peggy Johnson, M. Marinovich, S. Schnitt, Irene Wapnir, Meena Moran (2016)
Society of Surgical Oncology–American Society for Radiation Oncology–American Society of Clinical Oncology Consensus Guideline on Margins for Breast-Conserving Surgery with Whole-Breast Irradiation in Ductal Carcinoma In SituAnnals of Surgical Oncology, 23
R. Clement, A. Welander, C. Stowell, T. Cha, J. Chen, M. Davies, J. Fairbank, K. Foley, M. Gehrchen, Olle Hagg, W. Jacobs, Richard Kahler, Safdar Khan, I. Lieberman, Beth Morisson, D. Ohnmeiss, W. Peul, N. Shonnard, M. Smuck, T. Solberg, B. Stromqvist, M. Hooff, A. Wasan, P. Willems, W. Yeo, P. Fritzell (2015)
A proposed set of metrics for standardized outcome reporting in the management of low back painActa Orthopaedica, 86
Kathleen Carberry, Zachary Landman, Michelle Xie, T. Feeley, John Henderson, Charles Fraser (2016)
Incorporating longitudinal pediatric patient-centered outcome measurement into the clinical workflow using a commercial electronic health record: a step toward increasing value for the patientJournal of the American Medical Informatics Association : JAMIA, 23 1
(1995)
Effects of radiotherapy and surgery in early breast cancer: an overview of the randomized trials. Early Breast Cancer Trialists? Collaborative Group, 333
ME Porter (2010)
What is value in health care?, 363
Erica Warner, R. Tamimi, M. Hughes, R. Ottesen, Y. Wong, S. Edge, R. Theriault, D. Blayney, J. Niland, E. Winer, J. Weeks, A. Partridge (2015)
Racial and Ethnic Differences in Breast Cancer Survival: Mediating Effect of Tumor Characteristics and Sociodemographic and Treatment Factors.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 33 20
F. Cardoso, A. Costa, L. Norton, E. Senkus, M. Aapro, F. André, C. Barrios, J. Bergh, L. Biganzoli, K. Blackwell, M. Cardoso, T. Čufer, N. Saghir, L. Fallow, Eld, D. Fenech, P. Francis, K. Gelmon, S. Giordano, J. Gligorov, A. Goldhirsch, N. Harbeck, N. Houssami, C. Hudis, B. Kaufman, I. Krop, S. Kyriakides, U. Lin, M. Mayer, S. Merjaver, E. Nordström, O. Pagani, A. Partridge, F. Penault-Llorca, M. Piccart, H. Rugo, G. Sledge, C. Thomssen, L. Van, T. Veer, D. Vorobiof, C. Vrieling, N. West, B. Xu, E. Winer (2014)
ESO-ESMO 2 nd international consensus guidelines for advanced breast cancer ( ABC 2 )
M. Petersen, M. Groenvold, N. Aaronson, W. Chie, T. Conroy, A. Costantini, P. Fayers, J. Helbostad, B. Holzner, S. Kaasa, S. Singer, G. Velikova, T. Young (2010)
Development of computerised adaptive testing (CAT) for the EORTC QLQ-C30 dimensions - general approach and initial results for physical functioning.European journal of cancer, 46 8
Caprice Greenberg, Stuart Lipsitz, M. Hughes, Stephen Edge, R. Theriault, John Wilson, W. Carter, Douglas Blayney, J. Niland, Jane Weeks (2011)
Institutional Variation in the Surgical Treatment of Breast Cancer: A Study of the NCCNAnnals of Surgery, 254
K. Itani (2009)
Fifteen years of the National Surgical Quality Improvement Program in review.American journal of surgery, 198 5 Suppl
J. Nes, C. Seynaeve, S. Jones, C. Markopoulos, H. Putter, C. Velde (2010)
Variations in locoregional therapy in postmenopausal patients with early breast cancer treated in different countriesBritish Journal of Surgery, 97
(2014)
European School of Oncology; European Society of Medical Oncology. ESO-ESMO 2nd international consensus guidelines for advanced breast cancer
A. Partridge, Andrea LaFountain, E. Mayer, B. Taylor, E. Winer, A. Asnis-Alibozek (2008)
Adherence to initial adjuvant anastrozole therapy among women with early-stage breast cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 26 4
M. Turco, A. Ponti, U. Bick, L. Biganzoli, G. Cserni, B. Cutuli, T. Decker, M. Dietel, O. Gentilini, T. Kuehn, M. Mano, P. Mantellini, L. Marotti, P. Poortmans, F. Rank, H. Roe, E. Scaffidi, J. Hage, G. Viale, C. Wells, M. Wełnicka-Jaśkiewicz, Y. Wengstöm, L. Cataliotti (2010)
Quality indicators in breast cancer care.European journal of cancer, 46 13
N. Aaronson, S. Ahmedzai, B. Bergman, M. Bullinger, A. Cull, N. Duez, A. Filiberti, H. Flechtner, S. Fleishman, J. Haes, S. Kaasa, M. Klee, D. Osoba, D. Razavi, Peter Rofe, S. Schraub, K. Sneeuw, M. Sullivan, F. Takeda (1993)
The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology.Journal of the National Cancer Institute, 85 5
R. Jeevan, D. Cromwell, J. Browne, C. Caddy, J. Pereira, C. Sheppard, K. Greenaway, J. Meulen (2014)
Findings of a national comparative audit of mastectomy and breast reconstruction surgery in England.Journal of plastic, reconstructive & aesthetic surgery : JPRAS, 67 10
A. Howell, G. Ribeiro, R. Swindell (1995)
Effects of radiotherapy and surgery in early breast cancer. An overview of the randomized trials.The New England journal of medicine, 333 22
(2016)
Estimated Incidence, Mortality and Prevalence Worldwide in 2012
E. Senkus, S. Kyriakides, S. Ohno, F. Penault-Llorca, P. Poortmans, E. Rutgers, S. Zackrisson, F. Cardoso (2015)
Primary breast cancer: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up.Annals of oncology : official journal of the European Society for Medical Oncology, 26 Suppl 5
A. Olomu, W. Corser, M. Stommel, Yan Xie, M. Holmes-Rovner (2012)
Do self-report and medical record comorbidity data predict longitudinal functional capacity and quality of life health outcomes similarly?BMC Health Services Research, 12
O. Sangha, G. Stucki, M. Liang, A. Fossel, J. Katz (2003)
The Self-Administered Comorbidity Questionnaire: a new method to assess comorbidity for clinical and health services research.Arthritis and rheumatism, 49 2
K. Dundas, E. Pogson, V. Batumalai, M. Boxer, M. Yap, G. Delaney, P. Metcalfe, L. Holloway (2015)
Australian survey on current practices for breast radiotherapyJournal of Medical Imaging and Radiation Oncology, 59
R. McNamara, E. Spatz, T. Kelley, C. Stowell, J. Beltrame, P. Heidenreich, R. Tresserras, T. Jernberg, T. Chua, Louise Morgan, B. Panigrahi, Alba Ruiz, J. Rumsfeld, Lawrence Sadwin, M. Schoeberl, D. Shahian, C. Weston, R. Yeh, Jack Lewin (2015)
Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM)Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, 4
D. Dindo, N. Demartines, P. Clavien (2004)
Classification of Surgical Complications: A New Proposal With Evaluation in a Cohort of 6336 Patients and Results of a SurveyAnnals of Surgery, 240
M. Sprangers, M. Groenvold, J. Arraras, J. Franklin, A. Velde, M. Muller, L. Franzini, Anna Williams, H. Haes, P. Hopwood, A. Cull, N. Aaronson (1996)
The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: first results from a three-country field study.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 14 10
I. Vaz-Luis, N. Lin, N. Keating, W. Barry, H. Lii, E. Winer, R. Freedman (2015)
Racial differences in outcomes for patients with metastatic breast cancer by disease subtypeBreast Cancer Research and Treatment, 151
K. Mak, Annelotte Bommel, C. Stowell, J. Abrahm, M. Baker, C. Baldotto, D. Baldwin, D. Borthwick, D. Carbone, Aileen Chen, J. Fox, T. Haswell, M. Koczywas, B. Kozower, R. Mehran, F. Schramel, S. Senan, R. Stirling, J. Meerbeeck, M. Wouters, M. Peake (2016)
Defining a standard set of patient-centred outcomes for lung cancerThe European Respiratory Journal, 48
T. Azad, M. Kalani, T. Wolf, Alisa Kearney, Yohan Lee, Lisa Flannery, David Chen, R. Berroya, M. Eisenberg, Jon Park, L. Shuer, Alison Kerr, J. Ratliff (2016)
Building an electronic health record integrated quality of life outcomes registry for spine surgery.Journal of neurosurgery. Spine, 24 1
Prostate Cancer Outcomes Info Sheet
B. Reeve, KathleenW. Wyrwich, A. Wu, G. Velikova, C. Terwee, C. Snyder, Carolyn Schwartz, D. Revicki, C. Moinpour, Lori McLeod, Jessica Lyons, W. Lenderking, P. Hinds, R. Hays, J. Greenhalgh, R. Gershon, D. Feeny, P. Fayers, D. Cella, M. Brundage, Sara Ahmed, N. Aaronson, Z. Butt (2013)
ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness researchQuality of Life Research, 22
M. Boult, Astrid Cuncins‐Hearn, S. Tyson, J. Kollias, W. Babidge, G. Maddern (2005)
National Breast Cancer Audit: establishing a web‐based data systemANZ Journal of Surgery, 75
(2016)
USDepartmentofHealthandHumanServices. Commonterminologycriteriaforadverseevents (CTCAE)version4.0
R. Freedman, E. Kouri, D. West, N. Keating (2015)
Racial/Ethnic Differences in Patients' Selection of Surgeons and Hospitals for Breast Cancer Surgery.JAMA oncology, 1 2
J. Bootman (2006)
Value in health care.Managed care interface, 19 7
O. Fayanju, Tinisha Mayo, Tracy Spinks, Seohyun Lee, C. Barcenas, Benjamin Smith, S. Giordano, R. Hwang, R. Ehlers, J. Selber, R. Walters, D. Tripathy, K. Hunt, T. Buchholz, T. Feeley, H. Kuerer (2016)
Value-Based Breast Cancer Care: A Multidisciplinary Approach for Defining Patient-Centered OutcomesAnnals of Surgical Oncology, 23
A. Trotti, A. Colevas, A. Setser, E. Basch (2007)
Patient-reported outcomes and the evolution of adverse event reporting in oncology.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 25 32
J. Sariego (2008)
Regional variation in breast cancer treatment throughout the United States.American journal of surgery, 196 4
I. Mahmud, T. Kelley, C. Stowell, A. Haripriya, Anders Boman, I. Kossler, N. Morlet, Suzann Pershing, K. Pesudovs, P. Goh, J. Sparrow, M. Lundström (2015)
A Proposed Minimum Standard Set of Outcome Measures for Cataract Surgery.JAMA ophthalmology, 133 11
A. Aizer, Ming-Hui Chen, E. McCarthy, Mallika Mendu, S. Koo, T. Wilhite, Powell Graham, T. Choueiri, K. Hoffman, N. Martin, Jim Hu, P. Nguyen (2013)
Marital status and survival in patients with cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 31 31
K. Chung (2009)
Development of a New Patient-Reported Outcome Measure for Breast Surgery: The BREAST-Q
E. Basch, A. Deal, M. Kris, H. Scher, C. Hudis, P. Sabbatini, L. Rogak, A. Bennett, A. Dueck, T. Atkinson, J. Chou, Dorothy Dulko, L. Sit, A. Barz, P. Novotny, M. Fruscione, J. Sloan, D. Schrag (2016)
Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 34 6
A. Fong, J. Shafiq, C. Saunders, A. Thompson, S. Tyldesley, I. Olivotto, M. Barton, J. Dewar, S. Jacob, W. Ng, C. Speers, G. Delaney (2012)
A comparison of surgical and radiotherapy breast cancer therapy utilization in Canada (British Columbia), Scotland (Dundee), and Australia (Western Australia) with models of "optimal" therapy.Breast, 21 4
A. Fong, J. Shafiq, C. Saunders, A. Thompson, S. Tyldesley, I. Olivotto, M. Barton, J. Dewar, S. Jacob, Weng Ng, C. Speers, G. Delaney (2012)
A comparison of systemic breast cancer therapy utilization in Canada (British Columbia), Scotland (Dundee), and Australia (Western Australia) with models of "optimal" therapy.Breast, 21 4
F. Cardoso, A. Costa, L. Norton, E. Senkus, M. Aapro, F. André, C. Barrios, J. Bergh, L. Biganzoli, K. Blackwell, M. Cardoso, T. Čufer, N. Saghir, L. Fallowfield, D. Fenech, P. Francis, K. Gelmon, S. Giordano, J. Gligorov, A. Goldhirsch, N. Harbeck, N. Houssami, C. Hudis, B. Kaufman, I. Krop, S. Kyriakides, U. Lin, M. Mayer, S. Merjaver, E. Nordström, O. Pagani, A. Partridge, F. Penault-Llorca, M. Piccart, H. Rugo, G. Sledge, C. Thomssen, L. Veer, D. Vorobiof, C. Vrieling, N. West, Bing-he Xu, E. Winer (2014)
ESO-ESMO 2nd international consensus guidelines for advanced breast cancer (ABC2)†Annals of Oncology, 25
Breast Cancer Audit NABON . Annual Reports 2011
L. Fallowfield, S. Leaity, A. Howell, S. Benson, D. Cella (1999)
Assessment of quality of life in women undergoing hormonal therapy for breast cancer: validation of an endocrine symptom subscale for the FACT‐BBreast Cancer Research and Treatment, 55
Scientific (2003)
International Standard Classification of Education, ISCED 1997
M. Maio, C. Gallo, N. Leighl, M. Piccirillo, G. Daniele, F. Nuzzo, C. Gridelli, V. Gebbia, F. Ciardiello, S. Placido, A. Ceribelli, A. Favaretto, A. Matteis, R. Feld, C. Butts, J. Bryce, S. Signoriello, A. Morabito, G. Rocco, F. Perrone (2015)
Symptomatic toxicities experienced during anticancer treatment: agreement between patient and physician reporting in three randomized trials.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 33 8
A. Morgans, Annelotte Bommel, C. Stowell, J. Abrahm, E. Basch, J. Bekelman, D. Berry, A. Bossi, I. Davis, T. Reijke, L. Denis, S. Evans, N. Fleshner, D. George, Jim Kiefert, D. Lin, A. Matthew, R. McDermott, H. Payne, I. Roos, D. Schrag, T. Steuber, B. Tombal, J. Basten, J. Hoeven, D. Penson (2015)
Development of a Standardized Set of Patient-centered Outcomes for Advanced Prostate Cancer: An International Effort for a Unified Approach.European urology, 68 5
A major challenge in value-based health care is the lack of standardized health outcomes measurements, hindering optimal monitoring and comparison of the quality of health care across different settings globally. The International Consortium for Health Outcomes Measurement (ICHOM) assembled a multidisciplinary international working group, comprised of 26 health care providers and patient advocates, to develop a standard set of value-based patient-centered outcomes for breast cancer (BC). The working group convened via 8 teleconferences and completed a follow-up survey after each meeting. A modified 2-round Delphi method was used to achieve consensus on the outcomes and case-mix variables to be included. Patient focus group meetings (8 early or metastatic BC patients) and online anonymized surveys of 1225 multinational BC patients and survivors were also conducted to obtain patients’ input. The standard set encompasses survival and cancer control, and disutility of care (eg, acute treatment complications) outcomes, to be collected through administrative data and/or clinical records. A combination of multiple patient-reported outcomes measurement (PROM) tools is recommended to capture long-term degree of health outcomes. Selected case-mix factors were recommended to be collected at baseline. The ICHOM will endeavor to achieve wide buy-in of this set and facilitate its implementation in routine clinical practice in various settings and institutions worldwide.
JAMA Oncology – American Medical Association
Published: May 29, 2017
Read and print from thousands of top scholarly journals.
Already have an account? Log in
Bookmark this article. You can see your Bookmarks on your DeepDyve Library.
To save an article, log in first, or sign up for a DeepDyve account if you don’t already have one.
Copy and paste the desired citation format or use the link below to download a file formatted for EndNote
Access the full text.
Sign up today, get DeepDyve free for 14 days.
All DeepDyve websites use cookies to improve your online experience. They were placed on your computer when you launched this website. You can change your cookie settings through your browser.