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Patient Data Ownership—Reply

Patient Data Ownership—Reply Letters 4. Guérin C, Reignier J, Richard JC, et al; PROSEVA Study Group. Prone 1. Mikk KA, Sleeper HA, Topol EJ. The pathway to patient data ownership and positioning in severe acute respiratory distress syndrome. N Engl J Med. 2013; better health. JAMA. 2017;318(15):1433-1434. 368(23):2159-2168. 2. Contreras JL. Genetic property. Georgetown Law J. 2016;105(1):1-54. 5. Reske AW, Costa EL, Reske AP, et al. Bedside estimation of nonaerated lung 3. Evans BJ. Much ado about data ownership. Harvard J Law Tech. tissue using blood gas analysis. Crit Care Med. 2013;41(3):732-743. 2011;25(1):69-130. 6. Roan E, Wilhelm K, Bada A, et al. Hyperoxia alters the mechanical properties of alveolar epithelial cells. Am J Physiol Lung Cell Mol Physiol. 2012;302(12): L1235-L1241. In Reply Mr Contreras and colleagues express concern that providing individuals with control over their complete, longitudinal health data could result in less-effective scien- Patient Data Ownership tific research because individuals may not choose to share To the Editor The Viewpoint by Ms Mikk and colleagues their data. However, multiple studies have shown that indi- aimed to improve patient engagement and health care infor- viduals are far more willing to share their medical data for matics and to recommend technical improvements to http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png JAMA American Medical Association

Patient Data Ownership—Reply

JAMA , Volume 319 (9) – Mar 6, 2018

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References (2)

Publisher
American Medical Association
Copyright
Copyright 2018 American Medical Association. All Rights Reserved.
ISSN
0098-7484
eISSN
1538-3598
DOI
10.1001/jama.2017.21688
pmid
29509862
Publisher site
See Article on Publisher Site

Abstract

Letters 4. Guérin C, Reignier J, Richard JC, et al; PROSEVA Study Group. Prone 1. Mikk KA, Sleeper HA, Topol EJ. The pathway to patient data ownership and positioning in severe acute respiratory distress syndrome. N Engl J Med. 2013; better health. JAMA. 2017;318(15):1433-1434. 368(23):2159-2168. 2. Contreras JL. Genetic property. Georgetown Law J. 2016;105(1):1-54. 5. Reske AW, Costa EL, Reske AP, et al. Bedside estimation of nonaerated lung 3. Evans BJ. Much ado about data ownership. Harvard J Law Tech. tissue using blood gas analysis. Crit Care Med. 2013;41(3):732-743. 2011;25(1):69-130. 6. Roan E, Wilhelm K, Bada A, et al. Hyperoxia alters the mechanical properties of alveolar epithelial cells. Am J Physiol Lung Cell Mol Physiol. 2012;302(12): L1235-L1241. In Reply Mr Contreras and colleagues express concern that providing individuals with control over their complete, longitudinal health data could result in less-effective scien- Patient Data Ownership tific research because individuals may not choose to share To the Editor The Viewpoint by Ms Mikk and colleagues their data. However, multiple studies have shown that indi- aimed to improve patient engagement and health care infor- viduals are far more willing to share their medical data for matics and to recommend technical improvements to

Journal

JAMAAmerican Medical Association

Published: Mar 6, 2018

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