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D. Blumenthal (2017)
Data Withholding in the Age of Digital Health.The Milbank quarterly, 95 1
M. Rodwin (2010)
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Letters 4. Guérin C, Reignier J, Richard JC, et al; PROSEVA Study Group. Prone 1. Mikk KA, Sleeper HA, Topol EJ. The pathway to patient data ownership and positioning in severe acute respiratory distress syndrome. N Engl J Med. 2013; better health. JAMA. 2017;318(15):1433-1434. 368(23):2159-2168. 2. Contreras JL. Genetic property. Georgetown Law J. 2016;105(1):1-54. 5. Reske AW, Costa EL, Reske AP, et al. Bedside estimation of nonaerated lung 3. Evans BJ. Much ado about data ownership. Harvard J Law Tech. tissue using blood gas analysis. Crit Care Med. 2013;41(3):732-743. 2011;25(1):69-130. 6. Roan E, Wilhelm K, Bada A, et al. Hyperoxia alters the mechanical properties of alveolar epithelial cells. Am J Physiol Lung Cell Mol Physiol. 2012;302(12): L1235-L1241. In Reply Mr Contreras and colleagues express concern that providing individuals with control over their complete, longitudinal health data could result in less-effective scien- Patient Data Ownership tific research because individuals may not choose to share To the Editor The Viewpoint by Ms Mikk and colleagues their data. However, multiple studies have shown that indi- aimed to improve patient engagement and health care infor- viduals are far more willing to share their medical data for matics and to recommend technical improvements to
JAMA – American Medical Association
Published: Mar 6, 2018
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