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The Challenge of Chronic Illness

The Challenge of Chronic Illness Abstract The one feature that permits us to consider disorders as biologically diverse as diabetes, asthma, epilepsy, and hemophilia in the same light is the simple fact of their chronicity. Because most chronic illnesses are not curable and few will improve spontaneously, the care of children with these disorders is frustrating and complex. For many of these children the assistance of co-professionals is required, and the pediatrician's job becomes as much that of manager as active therapist. Because these disorders will persist for long periods if not indefinitely, there is a distinct risk that some children will begin to regard themselves as "sick" and "defective," rather than as persons with a sickness or defect. The evidence suggests, when this occurs, that secondary psychological and social disabilities follow, so that eventually the original disability may be compounded by secondary handicaps that will have further adverse effects on the child's future.1 The References 1. Pless IB, Roghmann KJ: Chronic illness and its consequences: Observations based on three epidemiologic surveys . J Pediatr 79:351-359, 1971.Crossref 2. North AF Jr: Action for improved maternal and child health . J Pediatr 78:167-176, 1971.Crossref 3. Schiffer CG, Hunt EP: Illness Among Children . US Government Printing Office, 1963. 4. Ingelfinger FJ: Haves and have-nots in the world of disease . N Engl J Med 287:1198-1199, 1972.Crossref 5. Richardson WP, Higging AC, Ames RC: The Handicapped Children of Alamance County—A Medical and Sociological Study . Nemours Foundation, 1965. 6. Battle CU: The roles of the pediatrician as ombudsman in the health care of the young handicapped child . Pediatrics 50:916-922, 1972. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png American Journal of Diseases of Children American Medical Association

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References (6)

Publisher
American Medical Association
Copyright
Copyright © 1973 American Medical Association. All Rights Reserved.
ISSN
0002-922X
DOI
10.1001/archpedi.1973.02110190593001
Publisher site
See Article on Publisher Site

Abstract

Abstract The one feature that permits us to consider disorders as biologically diverse as diabetes, asthma, epilepsy, and hemophilia in the same light is the simple fact of their chronicity. Because most chronic illnesses are not curable and few will improve spontaneously, the care of children with these disorders is frustrating and complex. For many of these children the assistance of co-professionals is required, and the pediatrician's job becomes as much that of manager as active therapist. Because these disorders will persist for long periods if not indefinitely, there is a distinct risk that some children will begin to regard themselves as "sick" and "defective," rather than as persons with a sickness or defect. The evidence suggests, when this occurs, that secondary psychological and social disabilities follow, so that eventually the original disability may be compounded by secondary handicaps that will have further adverse effects on the child's future.1 The References 1. Pless IB, Roghmann KJ: Chronic illness and its consequences: Observations based on three epidemiologic surveys . J Pediatr 79:351-359, 1971.Crossref 2. North AF Jr: Action for improved maternal and child health . J Pediatr 78:167-176, 1971.Crossref 3. Schiffer CG, Hunt EP: Illness Among Children . US Government Printing Office, 1963. 4. Ingelfinger FJ: Haves and have-nots in the world of disease . N Engl J Med 287:1198-1199, 1972.Crossref 5. Richardson WP, Higging AC, Ames RC: The Handicapped Children of Alamance County—A Medical and Sociological Study . Nemours Foundation, 1965. 6. Battle CU: The roles of the pediatrician as ombudsman in the health care of the young handicapped child . Pediatrics 50:916-922, 1972.

Journal

American Journal of Diseases of ChildrenAmerican Medical Association

Published: Dec 1, 1973

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