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Psychosocial Effects of Sickle Cell Disease

Psychosocial Effects of Sickle Cell Disease Abstract The psychosocial adaptation of an individual with sickle cell anemia is dependent on a number of variables, including the personality structure, family attitudes and behavior, and community responses and resources. Interactions of the individual, family, and community, and areas of stress and crises are analyzed by means of a developmental-maturational approach. Accurate knowledge of the disease, anticipatory guidance and continued (intermittent) counseling by trained health professionals, encourage and facilitate positive adaptations. Unfortunately, in current sickle cell programming, there are features that can have a negative psychosocial impact on individuals with sickle cell trait and anemia, the black population and society at large. These features include inaccurate communication materials; inaccurate diagnosis by physicians; lack of or improper counseling; unproved, unrealistic health care recommendations; and mandatory testing laws. References 1. Barker G: Adjustment to Physical Handicap and Illness: A Survey of the Social Psychology of Physique and Disability . New York, Social Science Research Council, 1953. 2. Noland RL (ed): Counseling Parents of the Ill and the Handicapped . Springfield, Ill, Charles C Thomas Publisher, 1971. 3. McDaniel JW: Physical Disability and Human Behavior . New York, Pergamon Press Inc, 1969. 4. Michaux LA: The Physically Handicapped and the Community . Springfield, Ill, Charles C Thomas Publisher, 1970. 5. Report of a Conference on Care of Chronically Ill Adults , No. G354-16M-8/71-1860. Chicago, American Hospital Association, 1971. 6. Wright BA: Physical Disability: A Psychological Approach . New York, Harper & Row Publishers, 1960. 7. A Critical Review of Informational Materials Relating to Sickle Cell Anemia and Sickle Cell Trait , Report of the Scientific Advisory Committee of the National Association for Sickle Cell Disease. Los Angeles, National Association for Sickle Cell Disease, 1973. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Archives of Internal Medicine American Medical Association

Psychosocial Effects of Sickle Cell Disease

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References (8)

Publisher
American Medical Association
Copyright
Copyright © 1974 American Medical Association. All Rights Reserved.
ISSN
0003-9926
eISSN
1538-3679
DOI
10.1001/archinte.1974.00320160175016
Publisher site
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Abstract

Abstract The psychosocial adaptation of an individual with sickle cell anemia is dependent on a number of variables, including the personality structure, family attitudes and behavior, and community responses and resources. Interactions of the individual, family, and community, and areas of stress and crises are analyzed by means of a developmental-maturational approach. Accurate knowledge of the disease, anticipatory guidance and continued (intermittent) counseling by trained health professionals, encourage and facilitate positive adaptations. Unfortunately, in current sickle cell programming, there are features that can have a negative psychosocial impact on individuals with sickle cell trait and anemia, the black population and society at large. These features include inaccurate communication materials; inaccurate diagnosis by physicians; lack of or improper counseling; unproved, unrealistic health care recommendations; and mandatory testing laws. References 1. Barker G: Adjustment to Physical Handicap and Illness: A Survey of the Social Psychology of Physique and Disability . New York, Social Science Research Council, 1953. 2. Noland RL (ed): Counseling Parents of the Ill and the Handicapped . Springfield, Ill, Charles C Thomas Publisher, 1971. 3. McDaniel JW: Physical Disability and Human Behavior . New York, Pergamon Press Inc, 1969. 4. Michaux LA: The Physically Handicapped and the Community . Springfield, Ill, Charles C Thomas Publisher, 1970. 5. Report of a Conference on Care of Chronically Ill Adults , No. G354-16M-8/71-1860. Chicago, American Hospital Association, 1971. 6. Wright BA: Physical Disability: A Psychological Approach . New York, Harper & Row Publishers, 1960. 7. A Critical Review of Informational Materials Relating to Sickle Cell Anemia and Sickle Cell Trait , Report of the Scientific Advisory Committee of the National Association for Sickle Cell Disease. Los Angeles, National Association for Sickle Cell Disease, 1973.

Journal

Archives of Internal Medicine – American Medical Association

Published: Apr 1, 1974

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