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(2003)
Psychosocial issues in cancer genetics–current status and future directions
C. Foster, M. Watson, C. Moynihan, A. Ardern-jones, R. Eeles (2002)
Genetic Testing for Breast and Ovarian Cancer Predisposition: Cancer Burden and ResponsibilityJournal of Health Psychology, 7
H. Lynch, J. Lynch, P. Lynch, T. Attard (2007)
Hereditary colorectal cancer syndromes: molecular genetics, genetic counseling, diagnosis and managementFamilial Cancer, 7
S. Vadaparampil, M. Ropka, M. Stefanek (2004)
Measurement of psychological factors associated with genetic testing for hereditary breast, ovarian and colon cancersFamilial Cancer, 4
Jacqueline Lim, Mariette Macluran, M. Price, B. Bennett, P. Butow, kConFab Group (2004)
Short- and Long-Term Impact of Receiving Genetic Mutation Results in Women at Increased Risk for Hereditary Breast CancerJournal of Genetic Counseling, 13
B. Arver, A. Haegermark, Ulla Platten, A. Lindblom, Y. Brandberg (2004)
Evaluation of Psychosocial Effects of Pre-Symptomatic Testing for Breast/Ovarian and Colon Cancer Pre-Disposing Genes: A 12-Month Follow-UpFamilial Cancer, 3
K. Stein (1995)
Schema model of the self-concept.Image--the journal of nursing scholarship, 27 3
Robert Hanna (2011)
What is the self?Annals of the New York Academy of Sciences, 1234
P. Trask, A. Paterson, Catharine Wang, S. Hayasaka, K. Milliron, Laurie Blumberg, Richard Gonzalez, S. Murray, S. Merajver (2001)
Cancer‐specific worry interference in women attending a breast and ovarian cancer risk evaluation program: impact on emotional distress and health functioningPsycho‐Oncology, 10
Louise Melvin (2005)
Recurrence of pre-eclampsia across generations: exploring fetal and maternal genetic components in a population based cohortBMJ : British Medical Journal, 331
M. Esplen, N. Stuckless, J. Hunter, A. Liede, K. Metcalfe, G. Glendon, S. Narod, K. Butler, Jenna Scott, E. Irwin (2009)
The BRCA Self‐Concept Scale: a new instrument to measure self‐concept in BRCA1/2 mutation carriersPsycho‐Oncology, 18
E. Silber, J. Tippett (1965)
Self-Esteem: Clinical Assessment and Measurement ValidationPsychological Reports, 16
Deborah Bowen, Catherine Alfano, Bonnie McGregor, M. Andersen (2004)
The relationship between perceived risk, affect, and health behaviors.Cancer detection and prevention, 28 6
E. Bleiker, F. Menko, I. Kluijt, B. Taal, M. Gerritsma, L. Wever, N. Aaronson (2007)
Colorectal Cancer in the Family: Psychosocial Distress and Social Issues in the Years Following Genetic CounsellingHereditary Cancer in Clinical Practice, 5
M. Esplen, M. Esplen, Lisa Madlensky, Kate Butler, Wendy McKinnon, B. Bapat, J. Wong, M. Aronson, Steve Gallinger (2001)
Motivations and psychosocial impact of genetic testing for HNPCC.American journal of medical genetics, 103 1
W. Reynolds (1982)
Development of reliable and valid short forms of the marlowe-crowne social desirability scaleJournal of Clinical Psychology, 38
S. Briggs, J. Cheek (1986)
The role of factor analysis in the development and evaluation of personality scalesJournal of Personality, 54
S. Shiloh, L. Koehly, Jean Jenkins, J. Martín, Donald Hadley (2008)
Monitoring coping style moderates emotional reactions to genetic testing for hereditary nonpolyposis colorectal cancer: a longitudinal studyPsycho‐Oncology, 17
J. Heshka, C. Palleschi, Heather Howley, B. Wilson, P. Wells (2008)
A systematic review of perceived risks, psychological and behavioral impacts of genetic testingGenetics in Medicine, 10
S. Schild (1966)
The Challenging Opportunity for Social Workers in GeneticsSocial Work, 11
C. Lerman, Chanita Hughes, B. Trock, R. Myers, D. Main, Aba Bonney, M. Abbaszadegan, Anne Harty, B. Franklin, J. Lynch, H. Lynch (1999)
Genetic testing in families with hereditary nonpolyposis colon cancer.JAMA, 281 17
E. Sundin, M. Horowitz (2002)
Impact of Event Scale: psychometric properties.The British journal of psychiatry : the journal of mental science, 180
(1985)
Psychology and gender: Nebraska Symposium on motivation 1984
H. Miller, L. Bauman, Dana Friedman, J. Decosse (1987)
Psychosocial Adjustment of Familial Polyposis Patients and Participation in a Chemoprevention TrialThe International Journal of Psychiatry in Medicine, 16
M. Rosenberg (1966)
Society and the adolescent self-image
K. Aktán-Collán, A. Haukkala, J. Mecklin, A. Uutela, H. Kääriäinen (2001)
Psychological consequences of predictive genetic testing for hereditary non‐polyposis colorectal cancer (HNPCC): A prospective follow‐up studyInternational Journal of Cancer, 93
Barbara Curbow, M. Somerfield, M. Legro, John Sonnega (1990)
Self-concept and cancer in adults: theoretical and methodological issues.Social science & medicine, 31 2
Anne Ersig, D. Hadley, L. Koehly (2009)
Colon cancer screening practices and disclosure after receipt of positive or inconclusive genetic test results for hereditary nonpolyposis colorectal cancerCancer, 115
A. Codori, G. Petersen, Diana Miglioretti, E. Larkin, Marijayne Bushey, Candace Young, J. Brensinger, K. Johnson, J. Bacon, S. Booker (1999)
Attitudes toward colon cancer gene testing: factors predicting test uptake.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology, 8 4 Pt 2
E. Gritz, S. Peterson, S. Vernon, Salma Marani, W. Baile, B. Watts, C. Amos, M. Frazier, P. Lynch (2005)
Psychological impact of genetic testing for hereditary nonpolyposis colorectal cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 23 9
D. Lee (1969)
Society and the Adolescent Self-ImageSociology, 3
Isaac Marks, A. Mathews (1979)
Brief standard self-rating for phobic patients.Behaviour research and therapy, 17 3
W. Walsh, N. Betz (1985)
Tests and assessment
K. Aktán-Collán, J. Mecklin, H. Järvinen, M. Nyström-Lahti, P. Peltomäki, Ismo Söderling, A. Uutela, A. Chapelle, H. Kääriäinen (2000)
Predictive genetic testing for hereditary non‐polyposis colorectal cancer: Uptake and long‐term satisfactionInternational Journal of Cancer, 89
Mohammed Shaik, Supriya Saha, G. Gay, Sukamal Saha, A. Patel, R. Matro, Rachael Grosso, A. Sharpe, L. Katz, M. Ritchie, Scott Keith, Louis Broad, L. Greenbaum, P. Kozuch, D. Quirk, J. Sendecki, Constatine Daskalakis, Ramalinga Kedika, D. Kastenberg, L. Butterly, C. Robinson, Julie Weiss, M. Goodrich (2013)
ColonThe American Journal of Gastroenterology, 108
N. Hallowell, C. Foster, R. Eeles, A. Ardern-jones, M. Watson (2004)
Accommodating risk: responses to BRCA1/2 genetic testing of women who have had cancer.Social science & medicine, 59 3
R. Hamilton, Janet Williams, H. Skirton, B. Bowers (2009)
Living with genetic test results for hereditary breast and ovarian cancer.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing, 41 3
J. Rodin, L. Silberstein, R. Striegel-Moore (1985)
Women and weight: a normative discontent.Nebraska Symposium on Motivation. Nebraska Symposium on Motivation, 32
J. McCarthy, D. Hoge (1982)
Analysis of age effects in longitudinal studies of adolescent self-esteem.Developmental Psychology, 18
A. McConkie-Rosell, B. Devellis (2000)
Threat to Parental Role: A Possible Mechanism of Altered Self-Concept Related to Carrier KnowledgeJournal of Genetic Counseling, 9
M. Esplen, T. Berk, K. Butler, S. Gallinger, Z. Cohen, M. Trinkhaus (2004)
Quality of Life in Adults Diagnosed With Familial Adenomatous Polyposis and Desmoid TumorDiseases of the Colon & Rectum, 47
D. Cella, Chanita Hughes, A. Peterman, Chih-Hung Chang, B. Peshkin, M. Schwartz, L. Wenzel, A. Lemke, A. Marcus, C. Lerman (2002)
A brief assessment of concerns associated with genetic testing for cancer: the Multidimensional Impact of Cancer Risk Assessment (MICRA) questionnaire.Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 21 6
L. d'Agincourt-Canning (2001)
Experiences of genetic risk: disclosure and the gendering of responsibility.Bioethics, 15 3
D. Chung, A. Rustgi (2003)
The Hereditary Nonpolyposis Colorectal Cancer Syndrome: Genetics and Clinical ImplicationsAnnals of Internal Medicine, 138
I. Oostrom, H. Meijers-Heijboer, L. Lodder, H. Duivenvoorden, A. Gool, C. Seynaeve, C. Meer, J. Klijn, B. Geel, C. Burger, J. Wladimiroff, A. Tibben (2003)
Long-term psychological impact of carrying a BRCA1/2 mutation and prophylactic surgery: a 5-year follow-up study.Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 21 20
E. Giarelli (2006)
Self-surveillance for genetic predisposition to cancer: behaviors and emotions.Oncology nursing forum, 33 2
H. Markus, P. Nurius (2001)
Possible Selves
H. Markus, Elissa Wurf (1987)
THE DYNAMIC SELF-CONCEPT: A Social Psychological PerspectiveAnnual Review of Psychology, 38
Howard Markel (1992)
The stigma of disease: implications of genetic screening.The American journal of medicine, 93 2
M. Esplen, N. Stuckless, T. Berk, K. Butler, S. Gallinger (2008)
The FAP self-concept scale (adult form)Familial Cancer, 8
Y. Murakami, H. Okamura, K. Sugano, Teruhiko Yoshida, K. Kazuma, T. Akechi, Y. Uchitomi (2004)
Psychologic distress after disclosure of genetic test results regarding hereditary nonpolyposis colorectal carcinomaCancer, 101
E. Claes, L. Denayer, G. Evers‐Kiebooms, A. Boogaerts, E. Legius (2004)
Predictive testing for hereditary non-polyposis colorectal cancer: motivation, illness representations and short-term psychological impact.Patient education and counseling, 55 2
A. Baum, A. Friedman, S. Zakowski (1997)
Stress and genetic testing for disease risk.Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 16 1
Bettina Meiser, Veronica Collins, R. Warren, Clara Gaff, Djb John, M. Young, K. Harrop, Judith Brown, Jane Halliday, Jane Halliday (2004)
Psychological impact of genetic testing for hereditary non‐polyposis colorectal cancerClinical Genetics, 66
Dove-Edwin (2005)
Prevention of colorectal cancer by colonoscopic surveillance in individuals with a family history of colorectal cancer: 16 year, prospective, follow-up study.BMJ, 331
L. Pervin (1984)
Personality: Theory and Research
G. Devins, Heather Beanlands, Henry Mandin, Leendert Paul (1997)
Psychosocial impact of illness intrusiveness moderated by self-concept and age in end-stage renal disease.Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 16 6
A. Codori, K. Zawacki, G. Petersen, D. Miglioretti, J. Bacon, J. Trimbath, S. Booker, K. Picarello, F. Giardiello (2003)
Genetic testing for hereditary colorectal cancer in children: Long‐term psychological effectsAmerican Journal of Medical Genetics Part A, 116A
F. Zuuren (1988)
The fear questionnaire. Some data on validity, reliability and layout.British Journal of Psychiatry, 153
D. Jackson (1970)
A Sequential System for Personality Scale Development1, 2
M. Horowitz, N. Wilner, W. Alvarez (1979)
Impact of Event Scale: A Measure of Subjective StressPsychosomatic Medicine, 41
(1990)
Global self-esteem as a correlate of work-related attitudes: a question of dimensionality
H. Markus, R. Hamill, Keith Sentis (1987)
Thinking Fat: Self‐Schemas for Body Weight and the Processing of Weight Relevant Information1Journal of Applied Social Psychology, 17
M. Leòn, P. Benatti, C. Gregorio, M. Pedroni, L. Losi, Maurizio Genuardi, A. Viel, M. Fornasarig, E. Lucci-Cordisco, Marcello Anti, Giovanni Ponti, F. Borghi, I. Lamberti, L. Roncucci (2004)
Genetic testing among high-risk individuals in families with hereditary nonpolyposis colorectal cancerBritish Journal of Cancer, 90
T. García, P. Pintrich (1994)
Regulating motivation and cognition in the classroom: The role of self-schemas and self-regulatory strategies.
C. Read, Donna Perry, M. Duffy (2005)
Design and psychometric evaluation of the Psychological Adaptation to Genetic Information Scale.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing, 37 3
D. Kendzierski (1988)
Self-schemata and exerciseBasic and Applied Social Psychology, 9
H. Petersen, K. Domanska, P. Bendahl, J. Wong, C. Carlsson, I. Bernstein, M. Esplen, M. Nilbert (2011)
Validation of a Self-Concept Scale for Lynch Syndrome in Different NationalitiesJournal of Genetic Counseling, 20
Daniel Katz (1955)
Handbook of Social Psychology.Psychological Bulletin
V. Collins, B. Meiser, O. Ukoumunne, C. Gaff, C. Gaff, D. John, J. Halliday (2007)
The impact of predictive genetic testing for hereditary nonpolyposis colorectal cancer: three years after testingGenetics in Medicine, 9
M. Lewis, J. Haviland, L. Barrett (1993)
Handbook of Emotions
Esplen MJ, Stuckless N, Gallinger S, Aronson M, Rothenmund H, Semotiuk K, Stokes J, Way C, Green J, Butler K, Petersen HV, Wong J. Development and validation of an instrument to measure the impact of genetic testing on self‐concept in Lynch syndrome. A positive genetic test result may impact on a person's self‐concept and affect quality of life. The purpose of the study was to develop a self‐concept scale to measure such impact for individuals carrying mutations for a heritable colorectal cancer Lynch syndrome (LS). Two distinct phases were involved: Phase 1 generated specific colorectal self‐concept candidate scale items from interviews with eight LS carriers and five genetic counselors, which were added to a previously developed self‐concept scale for BRCA1/2 mutation carriers, Phase II had 115 LS carriers complete the candidate scale and a battery of validating measures. A 20‐item scale was developed with two dimensions identified through factor analysis: stigma/vulnerability and bowel symptom‐related anxiety. The scale showed excellent reliability (Cronbach's α = 0.93), good convergent validity by a high correlation with impact of event scale (r(102) = 0.55, p < 0.001) and Rosenberg self‐esteem scale (r(108) = −0.59, p < 0.001), and a low correlation with the Fear questionnaire (r(108) = 0.37, p < 0.001). The scale's performance was stable across participant characteristics. This new scale for measuring self‐concept has potential to be used as a clinical tool and as a measure for future studies.
Clinical Genetics – Wiley
Published: Nov 1, 2011
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