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Alzheimer's Caregiver Support Online: Lessons learned, initial findings and future directions

Alzheimer's Caregiver Support Online: Lessons learned, initial findings and future directions Family caregivers of older adults with progressive dementia (e.g., Alzheimer's disease) are faced with a variety of emotional and behavioral difficulties, such as dealing with persistent, repetitive questions, managing agitation and depression, and monitoring hygiene and self-care activities. Although professional and governmental organizations have called for the creation of community-based education and support programs, most dementia caregivers continue to receive little or no formal instruction in responding effectively to these challenges. The current paper describes the development and implementation of Alzheimer's Caregiver Support Online, a Web- and telephone-based education and support network for caregivers of individuals with progressive dementia. Lessons learned from the first two years of this state-supported initiative are discussed, followed by the findings of a Robert Wood Johnson Foundation-funded strategic marketing initiative and an initial program evaluation of AlzOnline's Positive Caregiving classes. Finally, clinical implications and future directions for program development and evaluation research are proposed. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png NeuroRehabilitation IOS Press

Alzheimer's Caregiver Support Online: Lessons learned, initial findings and future directions

NeuroRehabilitation , Volume 18 (2) – Jan 1, 2003

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Publisher
IOS Press
Copyright
Copyright © 2003 by IOS Press, Inc
ISSN
1053-8135
eISSN
1878-6448
Publisher site
See Article on Publisher Site

Abstract

Family caregivers of older adults with progressive dementia (e.g., Alzheimer's disease) are faced with a variety of emotional and behavioral difficulties, such as dealing with persistent, repetitive questions, managing agitation and depression, and monitoring hygiene and self-care activities. Although professional and governmental organizations have called for the creation of community-based education and support programs, most dementia caregivers continue to receive little or no formal instruction in responding effectively to these challenges. The current paper describes the development and implementation of Alzheimer's Caregiver Support Online, a Web- and telephone-based education and support network for caregivers of individuals with progressive dementia. Lessons learned from the first two years of this state-supported initiative are discussed, followed by the findings of a Robert Wood Johnson Foundation-funded strategic marketing initiative and an initial program evaluation of AlzOnline's Positive Caregiving classes. Finally, clinical implications and future directions for program development and evaluation research are proposed.

Journal

NeuroRehabilitationIOS Press

Published: Jan 1, 2003

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