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code of an individual should be protected and considered confidential information in all circumstances"? I think they are, but their conclusion with respect to genetic privacy deserves more analysis. Genetic information can be considered uniquely private or personal information, even more personal than other medical information such as human immunodeficiency virus (HIV) status or mental health, for at least three reasons: it can predict an individual's likely medical future; it divulges personal information about one's parents, siblings, and children; and it has a history of being used to stigmatize and victimize individuals. The highly personal nature of the information contained in one's deoxyribonucleic acid (DNA) can be illustrated by thinking of DNA as containing an individual's coded "future diary."3 A diary is perhaps the most personal and private document a person can create. It contains a person's innermost thoughts and perceptions and is usually hidden and locked to assure its secrecy. Diaries describe the past. The information in one's genetic code can be thought of as a coded probabilistic future diary because it describes an important part of a person's unique future and, as such, can affect and undermine one's view of himself or herself and his or
American Journal of Public Health – American Public Health Association
Published: Sep 1, 1995
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